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Common Data Element (CDE) Resource Portal

Summary Table for NIH CDE Tools and Resources

This table lists summary information for NIH CDE Tools and Resources. More information on NIH CDE Tools and Resources: Subject Areas, Detailed Summaries.

 

Link to HomepageLink to CDEsBrief SummarySubject AreaNumber of ElementsCDE Resource Contact
Cancer Data Standards Registry and Repository caDSR A database of CDEs related to cancer, including CDEs from a variety of sources. More... Cancer. More... 46,000+ NCI
database of Genotypes and Phenotypes dbGAP dbGaP was developed to archive and distribute the results of studies that have investigated the interaction of genotype and phenotype. More... Genome-wide association studies. More... 134,000+ NCBI
Federal Interagency Traumatic Brain Injury Research FITBIR System to share data across the entire TBI research field and to facilitate collaboration between laboratories, as well as interconnectivity with other informatics platforms. Traumatic brain injury. More... 2,000 NINDS
Grid-Enabled Measures GEM An interactive website that enables researchers to submit and rate measures. GEM encourages the use of common measures, and facilitates the sharing of harmonized data. More... Social sciences. More... 238 constructs, 462 measures NCI
National Collaborative on Childhood Obesity Research NCCOR A registry of dietary behavior and physical activity measures. More... Childhood obesity. More... 893 NIH
National Database of Autism Research NDAR NDAR is a data repository for studies of autism. NDAR collects instruments from researchers that contribute data. More... Autism and autism-spectrum disorders. More... thousands NIMH
Parkinson’s Disease Biomarkers Program PDBP Support new and existing research and resource development promoting biomarker discovery for Parkinson's disease. More... Parkinson's disease. More... 2,000 NINDS
Research Electronic Data Capture REDCap A repository of data collection instruments and forms. REDCap software allows users to create surveys and databases. More... Biomedical and clinical research. More... 143 instruments REDCap

 

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