Domains
This table displays the domains available in selected CDE Resources. This table shows how the Domains correspond with the Subject Areas designated in the CDE Resource Portal. For a broader view, Subject Areas for NIH CDE Initiatives and NIH CDE Tools and Resources are arranged in tables so they can be easily compared. Domains may change as additional CDEs are added to that Resource (domains assessed in June of 2012).
Resource | Subject Area | Domain Title from Resource | Domain Description from Resource |
---|---|---|---|
EDRN | Alcohol, Tobacco and Other Substances | Alcohol Consumption | Average number of drinks during different periods of the subject's lifetime. |
EDRN | Alcohol, Tobacco and Other Substances | Smoking History/Tobacco Usage | Average number of cigarettes during different periods of the subject's lifetime. |
GEM | Alcohol, Tobacco and Other Substances | Smoking/Tobacco | |
GEM | Alcohol, Tobacco and Other Substances | Substance Abuse | |
PhenX | Alcohol, Tobacco and Other Substances | Alcohol, Tobacco and Other Substances | Age of first use, frequency of use in the past 30 days, and lifetime use. |
PhenX | Alcohol, Tobacco and Other Substances | Substance Abuse and Addiction | Laboratory tests and history of the subject’s exposure to and use of alcohol, tobacco, and other substances. |
GRDR | Anthropometrics | Anthropometric | The subject’s current weight and height. |
NDAR | Anthropometrics | Physical Characteristics | |
PhenX | Anthropometrics | Anthropometrics | Physical measurements of the subject’s body. |
EDRN | Cancer | Cancer History | Cancer symptoms, detection, and treatment. |
EDRN | Cancer | Family Cancer History | Specific details about family cancer history. |
FACIT | Cancer | Bladder cancer | |
FACIT | Cancer | Bone Marrow Transplantation | |
FACIT | Cancer | Bone Treatment Convenience and Satisfaction | |
FACIT | Cancer | Brain cancer | |
FACIT | Cancer | Brain cancer - Pediatric | |
FACIT | Cancer | Breast cancer | |
FACIT | Cancer | Cancer in the Central Nervous System | |
FACIT | Cancer | Cancer of the Cervix | |
FACIT | Cancer | Cancer Therapy - General | |
FACIT | Cancer | Cancer Therapy - General Population | |
FACIT | Cancer | Cancer Therapy - Melanoma | |
FACIT | Cancer | Cancer Therapy - Multiple Myeloma | |
FACIT | Cancer | Colorectal cancer | |
FACIT | Cancer | Endometrial cancer | |
FACIT | Cancer | Gastric Cancer | |
FACIT | Cancer | Head & Neck cancer | |
FACIT | Cancer | Hepatobiliary cancer (liver, bile duct and pancreas) | |
FACIT | Cancer | Kidney cancer | |
FACIT | Cancer | Leukemia | |
FACIT | Cancer | Lung cancer | |
FACIT | Cancer | Lymphoma (NHL) | |
FACIT | Cancer | Nasopharyngeal cancer | |
FACIT | Cancer | Ovarian cancer | |
FACIT | Cancer | Prostate cancer | |
FACIT | Cancer | Taxane therapy | |
FACIT | Cancer | Vulva cancer | |
GEM | Cancer | Cancer | |
PhenX | Cancer | Cancer | Cancer screenings and risk factors for cancer. |
GEM | Cardiovascular and Circulatory | Cardiovascular | |
PhenX | Cardiovascular and Circulatory | Cardiovascular | Laboratory tests, family history, and medical history related to cardiovascular health. |
FACIT | Cardiovascular and Circulatory | Neutropenia | |
FACIT | Cardiovascular and Circulatory | Thrombocytopenia | |
FACIT | Cardiovascular and Circulatory | Lymphedema | |
EDRN | Demographics Patient Contact Info. | Directory | Contact information for the subject. |
EDRN | Demographics Patient Contact Info. | Demographics | Specific vital or social details about a subject. |
GEM | Demographics Patient Contact Info. | Education, Training, and or Career Development | |
GRDR | Demographics Patient Contact Info. | Contact & Communication Preferences | Patient preferred methods of contact and communication. |
GRDR | Demographics Patient Contact Info. | Current Contact Information | How to collect the address, phone numbers, and other contact information for each subject. |
GRDR | Demographics Patient Contact Info. | Socio-demographic | Specific vital, social, and economic details about subjects and their families. |
NDAR | Demographics Patient Contact Info. | Demographics | |
NINDS | Demographics Patient Contact Info. | General | Information applicable to studies involving a wide range of neurological disease and conditions, including demographics, medical history, treatment and intervention, and safety. |
PhenX | Demographics Patient Contact Info. | Demographics | Vital, social, and economic details about subjects and their families. |
FACIT | Diabetes and Other Endocrine | Endocrine Symptoms | |
GEM | Diabetes and Other Endocrine | Diabetes | |
PhenX | Diabetes and Other Endocrine | Diabetes | Laboratory tests, family history, and medical history related to diabetes. |
EDRN | Environmental Exposures | Occupational History | Occupation history and exposure to carcinogens. |
GEM | Environmental Exposures | Occupational Health | |
PhenX | Environmental Exposures | Environmental Exposures | Laboratory tests and history related to exposure to potential risks in the subject’s environment. |
EDRN | Excretory | Bladder | Bladder cancer related laboratory test information. |
EDRN | Excretory | Genitourinary | Genitourinary symptoms, detection, and treatment. |
EDRN | Excretory | Kidney | Renal disease and dialysis. |
EDRN | Excretory | Liver | Liver conditions symptoms, detection, and treatment. |
EDRN | Excretory | Urine | Details of specimen preparation and storage. |
FACIT | Excretory | Ascites | |
FACIT | Excretory | Incontinence Therapy - Urinary | |
EDRN | Gastrointestinal | Colorectal | Colorectal cancer symptoms, detection, and treatment. |
EDRN | Gastrointestinal | Gastrointestinal | Presence of gastral or esophageal varices. |
EDRN | Gastrointestinal | Pancreas | Details about pancreas pathology. |
EDRN | Gastrointestinal | Stool | Details of specimen preparation and storage. |
FACIT | Gastrointestinal | Abdominal symptoms | |
FACIT | Gastrointestinal | Diarrhea | |
FACIT | Gastrointestinal | Enteral Feeding | |
FACIT | Gastrointestinal | Esophageal cancer | |
FACIT | Gastrointestinal | Incontinence Therapy - Fecal | |
PhenX | Gastrointestinal | Gastrointestinal | Laboratory tests and medical history related to gastrointestinal health. |
FACIT | Infectious Diseases and Immunity | HIV Infection | |
GEM | Infectious Diseases and Immunity | HIV/AIDS | |
PhenX | Infectious Diseases and Immunity | Infectious Diseases and Immunity | Laboratory tests for a variety of infectious diseases. |
EDRN | Laboratory Tests | Blood | Details of specimen preparation and storage. |
EDRN | Laboratory Tests | Bone Marrow | Cell count, blast cells, and plasma cells. |
EDRN | Laboratory Tests | Cystoscopy | Details on cystoscopy. |
EDRN | Laboratory Tests | Imaging | Specific results for various types of medical imaging. |
EDRN | Laboratory Tests | Labs | Results for a variety of laboratory tests. |
EDRN | Laboratory Tests | Nipple Aspirate | Details of specimen preparation and storage. |
EDRN | Laboratory Tests | Specimen | Details of specimen preparation and storage. |
EDRN | Laboratory Tests | Specimen Collection | Details of specimen preparation and storage. |
EDRN | Laboratory Tests | Sputum | Details of specimen preparation and storage. |
EDRN | Laboratory Tests | Tissue | Details of specimen preparation and storage. |
NDAR | Laboratory Tests | DTI | |
NDAR | Laboratory Tests | fMRI | |
NDAR | Laboratory Tests | Gen Test | |
NDAR | Laboratory Tests | MRI | |
NDAR | Laboratory Tests | Spectroscopy | |
EDRN | Medical History | Family Medical History | Specific details about family medical history. |
EDRN | Medical History | Family Member | Number of different types of family members. |
EDRN | Medical History | Medical History | Extensive set of medical history questions, including general questions and those related to cancer. |
EDRN | Medical History | Personal History | Additional medical history questions. |
EDRN | Medical History | Surgical History | Date and details of previous biopsies and other surgeries. |
EDRN | Medical History | Systemic | Medical history of immunological conditions. |
FACIT | Medical History | EGFR Inhibitors | |
FACIT | Medical History | Non-Life Threatening Conditions | |
GEM | Medical History | Obesity | |
GEM | Medical History | Sleep | |
GEM | Medical History | Transplant | |
GRDR | Medical History | Diagnosis | Details on the subject’s rare disease diagnosis and when it was diagnosed. |
GRDR | Medical History | Family History | Guidelines on collecting information about family members with the same rare disease or condition as the subject. |
NDAR | Medical History | Diagnostic | |
NDAR | Medical History | Medical History | |
NDAR | Medical History | Treatment | |
NINDS | Medical History | General | Information applicable to studies involving a wide range of neurological disease and conditions, including demographics, medical history, treatment and intervention, and safety. |
EDRN | Medications, Devices, and Treatments | Medication Use | Extensive set of questions about past and present medication use. |
GRDR | Medications, Devices, and Treatments | Medications, Devices, and Health Services | Subject’s current medications, medical food, and assistive devices as well as their history of hospitalizations and surgeries. |
FACIT | Neurology | Multiple Sclerosis | |
FACIT | Neurology | Neurotoxicity | |
NINDS | Neurology | Amyotrophic Lateral Sclerosis | |
NINDS | Neurology | Congenital Muscular Dystrophy | |
NINDS | Neurology | Epilepsy | |
NINDS | Neurology | Friedreich's Ataxia | |
NINDS | Neurology | Frontotemporal Dementia | |
NINDS | Neurology | Headache | |
NINDS | Neurology | Huntington's Disease | |
NINDS | Neurology | Multiple Sclerosis | |
NINDS | Neurology | Neuromuscular Diseases | |
NINDS | Neurology | Parkinson's Disease | |
NINDS | Neurology | Spinal Cord Injury | |
NINDS | Neurology | Stroke | |
NINDS | Neurology | Traumatic Brain Injury | |
PhenX | Neurology | Neurology | Screens for particular neurological conditions and assesses memory. |
GEM | Nutrition and Dietary Supplements | Nutrition | |
PhenX | Nutrition and Dietary Supplements | Nutrition and Dietary Supplements | Laboratory tests and history of the subject’s intake of nutrients. |
PhenX | Ocular | Ocular | Laboratory tests, family history, and medical history related to ocular health. |
PhenX | Oral | Oral Health | Laboratory tests and history related to oral health. |
EDRN | Physical Function | Head and Neck | |
FACIT | Physical Function | Anemia/Fatigue | |
GEM | Physical Function | Physical Activity | |
GRDR | Physical Function | Patient Reported Outcome | Assessment of the subject’s physical functioning, pain, fatigue, and depression. |
NDAR | Physical Function | Physical Exam | |
Neuro-QOL | Physical Function | Lower Extremity Function - Mobility | |
Neuro-QOL | Physical Function | Upper Extremity Function – Fine Motor, ADL | |
NIH Toolbox | Physical Function | Motor Functioning | Locomotion, non-vestibular balance, dexterity, strength. |
NIH Toolbox | Physical Function | Sensation | Vision, hearing, vestibular balance, smell, taste, touch. |
PhenX | Physical Function | Physical Activity and Physical Fitness | Assess physical fitness. |
PROMIS | Physical Function | Mobility – Pediatric | Measures activities of physical mobility such as getting out of bed or a chair to activities such as running. |
PROMIS | Physical Function | Physical Function | Measures self-reported capability rather than actual performance of physical activities. |
PROMIS | Physical Function | Upper Extremity Function – Pediatric | Measures self-reported capability of activities that require use of the upper extremity including shoulder, arm, and hand activities. |
FACIT | Physical Symptoms (incl. pain, fatigue) | Bone Pain | |
GEM | Physical Symptoms (incl. pain, fatigue) | Pain | |
GRDR | Physical Symptoms (incl. pain, fatigue) | Patient Reported Outcome | Assessment of the subject’s physical functioning, pain, fatigue, and depression. |
Neuro-QOL | Physical Symptoms (incl. pain, fatigue) | Pain - Pediatric | |
PROMIS | Physical Symptoms (incl. pain, fatigue) | Pain Behavior | Measures external manifestations of pain, including observable displays, pain severity behaviors, and verbal reports of pain. |
PROMIS | Physical Symptoms (incl. pain, fatigue) | Pain Intensity | Measures pain intensity. |
PROMIS | Physical Symptoms (incl. pain, fatigue) | Pain Interference | Measures consequences of pain on relevant aspects of the subject’s life. |
PROMIS | Physical Symptoms (incl. pain, fatigue) | Pain Interference – Pediatric | Measures pain, divided into components of quality, interference with activities, and avoidance behaviors. |
FACIT | Psychiatric | Anorexia/Cachexia - Pediatric | |
FACIT | Psychiatric | Anorexia/Cachexia Treatment | |
FACIT | Psychiatric | Chronic Illness Therapy - Fatigue | |
FACIT | Psychiatric | Chronic Illness Therapy - Fatigue - Pediatric | |
FACIT | Psychiatric | Chronic Illness Therapy - Palliative Care | |
FACIT | Psychiatric | Chronic Illness Therapy - Spiritual Well-Being | |
FACIT | Psychiatric | Cognitive function issues | |
GRDR | Psychiatric | Patient Reported Outcome | Assessment of the subject’s physical functioning, pain, fatigue, and depression. |
Neuro-QOL | Psychiatric | Anger - Pediatric | |
Neuro-QOL | Psychiatric | Anxiety | |
Neuro-QOL | Psychiatric | Anxiety - Pediatric | |
Neuro-QOL | Psychiatric | Applied Cognition - General Concerns - Pediatric | |
Neuro-QOL | Psychiatric | Depression | |
Neuro-QOL | Psychiatric | Depression - Pediatric | |
Neuro-QOL | Psychiatric | Emotional and Behavioral Dyscontrol | |
Neuro-QOL | Psychiatric | Fatigue | |
Neuro-QOL | Psychiatric | Fatigue - Pediatric | |
Neuro-QOL | Psychiatric | Sleep Disturbance | |
PhenX | Psychiatric | Psychiatric | Screens for particular psychiatric conditions. |
PROMIS | Psychiatric | Anger | Measures angry mood, negative social cognitions, and efforts to control anger. Physical aggression items are not included. |
PROMIS | Psychiatric | Anger – Pediatric | Measures angry mood and aggression (verbal and physical). |
PROMIS | Psychiatric | Anxiety | Measures fear, anxious misery, hyperarousal, and somatic symptoms related to arousal. |
PROMIS | Psychiatric | Anxiety – Pediatric | Measures fear, anxious misery, and hyperarousal. |
PROMIS | Psychiatric | Applied Cognition – Abilities | PROMIS is currently developing these data elements. |
PROMIS | Psychiatric | Applied Cognition – Concerns | PROMIS is currently developing these data elements. |
PROMIS | Psychiatric | Depression | Measures negative mood, views of self, and social cognition, as well as decreased positive affect and engagement. Somatic symptoms are not included. |
PROMIS | Psychiatric | Depression – Pediatric | Measures negative mood, decrease in positive affect, negative views of the self, and negative social cognition. Physical symptoms are not included. |
PROMIS | Psychiatric | Fatigue | Measures fatigue symptoms, from mild tiredness to debilitating exhaustion. |
PROMIS | Psychiatric | Fatigue – Pediatric | Measures fatigue using terms familiar to children such as “tired”. |
PROMIS | Psychiatric | Illness Impact Negative | Measures the direct negative psychosocial effect of cancer, distinct from general emotional distress. |
PROMIS | Psychiatric | Illness Impact Positive | Measures the positive emotional and social outcomes of illness that can occur as a result of confrontation with one’s mortality. |
PROMIS | Psychiatric | Sleep Disturbance | Measures perceptions of sleep quality, sleep depth, and restoration associated with sleep. |
PROMIS | Psychiatric | Sleep-Related Impairment | Measures perceptions of alertness, sleepiness, tiredness during usual waking hours. |
FACIT | Psychosocial | Biologic Response Modifiers | |
GEM | Psychosocial | Mental Health | |
GEM | Psychosocial | Risk and Decision Making | |
GEM | Psychosocial | Spirituality | |
GEM | Psychosocial | Stress | |
GEM | Psychosocial | Sexual Behaviors | |
NDAR | Psychosocial | Behavior | |
NDAR | Psychosocial | Cognitive | |
NDAR | Psychosocial | IQ | |
NDAR | Psychosocial | Social Responsiveness | |
Neuro-QOL | Psychosocial | Ability to Participate in Social Roles and Activities | |
Neuro-QOL | Psychosocial | Applied Cognition - Executive Function | |
Neuro-QOL | Psychosocial | Applied Cognition - General Concerns | |
Neuro-QOL | Psychosocial | Positive Affect and Well-Being | |
Neuro-QOL | Psychosocial | Satisfaction with Social Roles and Activities | |
NIH Toolbox | Psychosocial | Cognition | Learning, memory, executive function, language/lexical retrieval, visuospatial abilities, attention, speed of processing. |
NIH Toolbox | Psychosocial | Emotion | Mood, adaptability, interpersonal relations, self- regulation. |
PhenX | Psychosocial | Psychosocial | Assesses the psychological and social health of the subject. |
PROMIS | Psychosocial | Ability to Participate in Social Roles and Activities | Measures the perceived ability to perform one’s usual social roles and activities. |
PROMIS | Psychosocial | Satisfaction with Social Roles and Activities | Measures satisfaction with performing one’s usual social roles and activities. |
EDRN | Reproductive | Breast | Breast cancer symptoms, detection, and treatment. |
EDRN | Reproductive | Gynecologic | Cervical and Histopathologic stage group. |
EDRN | Reproductive | Menstrual History | Information about menstrual history. |
EDRN | Reproductive | Ovary | FIGO Stage. |
EDRN | Reproductive | Prostate | Prostate biopsy information. |
FACIT | Reproductive | Cervical Dysplasia | |
GEM | Reproductive | Pregnancy | |
GRDR | Reproductive | Birth and Reproductive History | The subject’s own gestational history as well as the reproductive history of adult subjects. |
PhenX | Reproductive | Reproductive Health | Assesses sexual maturity, activity, and function, as well as fertility and reproductive health. |
PROMIS | Reproductive | Sexual Function | Measures sexual activity and satisfaction. |
EDRN | Respiratory | Lung | Lung conditions symptoms, detection, and treatment. |
FACIT | Respiratory | Chronic Illness Therapy - Dyspnea | |
PhenX | Respiratory | Respiratory | Laboratory tests, family history, and medical history related to respiratory health. |
PROMIS | Respiratory | Asthma Impact – Pediatric | Measures asthma-specific symptoms such as cough, wheeze, shortness of breath, and avoidance of triggers. Also measures impacts such as missing school or other activities. |
PhenX | Skin, Bone, Muscle and Joint | Skin, Bone, Muscle and Joint | Laboratory tests, family history, and medical history related to health of skin, bone, muscle, and joints. |
FACIT | Social Environments | Satisfaction with Pharmacist Scale | |
Neuro-QOL | Social Environments | Social Relations - Interaction with Adults - Pediatric | |
Neuro-QOL | Social Environments | Social Relations - Interaction with Peers - Pediatric | |
Neuro-QOL | Social Environments | Stigma | |
Neuro-QOL | Social Environments | Stigma - Pediatric | |
PhenX | Social Environments | Social Environments | Assesses positive and negative aspects of the subject’s socioeconomic environment. |
PROMIS | Social Environments | Companionship | Measures perceived availability of someone with whom to share enjoyable social activities. |
PROMIS | Social Environments | Emotional Support | Measures perceived feelings of being cared for and valued as a person. |
PROMIS | Social Environments | Informational Support | Measures perceived availability of helpful information or advice. |
PROMIS | Social Environments | Instrumental Support | Measures perceived availability of assistance with material, cognitive or task performance. |
PROMIS | Social Environments | Peer Relationships – Pediatric | Measures the quality of relationships with friends and other acquaintances. |
PROMIS | Social Environments | Social Isolation | Measures perceptions of being avoided, excluded, detached, disconnected from, or unknown by others. |
NDAR | Speech and Hearing | Speech-Language | |
Neuro-QOL | Speech and Hearing | Communication | |
PhenX | Speech and Hearing | Speech and Hearing | Laboratory tests, family history, and medical history related to speech and hearing. |
EDRN | Study Details | Consent | Subject authorization information. |
EDRN | Study Details | Data Collection Date | Dates of data collection from the subject. |
EDRN | Study Details | Participant ID | Study specific identifiers for a subject. |
EDRN | Study Details | Process | Specimen processing details. |
EDRN | Study Details | Protocol | Study and protocol details. |
EDRN | Study Details | Result | Results of observations or laboratory tests. |
EDRN | Study Details | Site | Details of study site and personnel. |
FACIT | Study Details | Chronic Illness Therapy - Treatment Satisfaction - General | |
FACIT | Study Details | Chronic Illness Therapy - Treatment Satisfaction - Patient Satisfaction | |
GRDR | Study Details | Clinical Research Participation & Biospecimens | Current, past and future participation of subject in clinical trials and biospecimens collection. |
NDAR | Study Details | Exposure | |
NDAR | Study Details | Questionnaire | |
NDAR | Study Details | Summary | |
NINDS | Study Details | General | Information applicable to studies involving a wide range of neurological disease and conditions, including demographics, medical history, treatment and intervention, and safety. |
Last Reviewed: January 3, 2013