NIH encourages the use of common data elements (CDEs) in clinical research, patient registries, and other human subject research in order to improve data quality and opportunities for comparison and combination of data from multiple studies and with electronic health records. This portal provides access to information about NIH-supported CDEs, as well as tools and resources to assist investigators developing protocols for data collection. What is a CDE?
Webinar: Overview of NIH CDE Initiatives (September 8, 2015) View slides / watch recording
NIH CDE Collections
Sets of CDEs that have been identified for use in particular types of research or research domains after a formal evaluation and selection process.
NIH CDE Repository
The Repository is a platform for identifying related data elements in use across diverse areas, for harmonizing data elements, and for linking CDEs to other existing standards and terminologies.
Some NIH programs have issued specific guidance for using CDEs in funded research.
The CDE Working Group of the Trans-NIH BioMedical Informatics Coordinating Committee (BMIC) developed this Portal to improve the coordination of CDEs. BMIC encourages researchers to use CDEs from the Resources in this Portal where applicable, and to consider existing CDE initiatives before starting additional initiatives.
Are we missing a CDE Resource? Contact us.
Last Reviewed: April 25, 2019