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FY 2006 AIDS Community Information Outreach Projects

NLM Funds 17 AIDS Community Information Outreach Projects in September 2006 in the 13th Round of the Program

NLM has continued its HIV/AIDS- related outreach efforts to community-based organizations, patient advocacy groups, faith-based organizations, departments of health, and libraries. This program provides support to design local programs for improving information access for AIDS patients and the affected community as well as their caregivers. Emphasis is on providing information or access in a way meaningful to the target community. Projects must involve one or more of the following information access categories: information retrieval, skills development, Internet access, resource development, and document access.

Awards were made for the following projects:

Standard Award Projects

AIDS Education Global Information System (AEGIS) “Project Restore/Expanded Access” (San Juan Capistrano, CA)

AIDS Education Global Information System (AEGiS) was established in the mid 1980’s to disseminate AIDS-related clinical information and late-breaking news to those in need and isolated by geographical location. AEGiS is presently serving over 900,000 users per month, and has archived over 1.1 million documents dealing with HIV/AIDS. The sources for this information include, but are not limited to, the National Library of Medicine, AIDS Service Organization publications, and Wire services (Agence Presse France, Associated Press, Inter Press Service, Reuters, BBC, Wall Street Journal, etc.). AEGiS seeks funding from NLM to assist in providing HIV/AIDS information to patients, the affected community, researchers and caregivers. Funding will assist AEGiS in seeking pre- and post- Internet/CDROM era conference abstracts, related news reports, and AIDS Community-Based Organization related reports to be integrated into the main database and disseminated via the AEGiS website.

AIDS Foundation of Chicago/Test Positive Aware Network “Peer Empowerment Education Referral Station (PEERS) Online Project” (Chicago, IL)

The AIDS Foundation of Chicago, founded in 1985, collaborates with community organizations to develop and improve HIV/AIDS services and coordinates prevention, care and advocacy projects. The goal of the Peer Empowerment Education Referral Station (PEERS) Online Project is to improve the ability of individuals who are newly diagnosed with HIV/AIDS to access quality HIV/AIDS information and referrals to Chicago area services. In collaboration with the Test Positive Aware Network, the PEERS Online Project will utilize print, animation, and audio/visual files to guide users through self-care modules which will facilitate access to care, HIV/AIDS information, and HIV-related services available throughout the Chicago metropolitan area. The presentations will allow individuals with low literacy skills and cognitive disabilities to use the modules for self-education and service referrals, and can be easily adapted for use in other languages. The AIDS Foundation of Chicago on the Web: The Test Positive Aware Network on the Web:

Alaska Native Tribal Health Consortium “Community Drum - An Alaska Native/Rural Alaska AIDS Information and Education Outreach Project” (Anchorage, AK)

The Alaska Native Tribal Health Consortium (ANTHC) is the largest tribal health care organization in the United States, formed in December 1997 to manage the statewide health services component of the Alaska Native health care system. The ANTHC’s Community Drum project provides internet information on the care and prevention of HIV/AIDS, links to various Alaska HIV/AIDS resources, and offers an opportunity for communication between Alaska Native consumers who are affected by HIV/AIDS. Community Drum will expand on the NLM previously funded project by translating the Community Drum stories into Yupik, Aleut, Tlingit, and Inupiaq and creating culturally-relevant HIV prevention materials for the four Alaska Native tribes. The HIV/AIDS information developed can be downloaded from the website for Tribal health organizations and communities to use as part of their patient education efforts. The Community Drum is on the Web:

Community Education Group “New Day” (Washington, DC)

The Community Education Group (CEG), a nonprofit agency, is dedicated to social change through the creation and expansion of programs addressing health, socio-economic, environmental and systemic challenges facing African American families. Through the New Day project, CEG will develop and distribute culturally and linguistically appropriate HIV/AIDS materials for African Americans who are recently released from incarceration. Community partners will be trained to engage community members in conversation about HIV/AIDS, and HIV/AIDS information resources will be distributed within the prison system and throughout the community. Fact sheets, informational booklets, and additional resources available on the CEG website will increase the awareness of HIV/AIDS information resources and issues related specifically to African Americans and HIV/AIDS. This information will provide recently released persons and their partners with a fresh start toward HIV prevention. The Community Education Group on the Web:

The CORE Foundation “Project AHEADD - Access to Health Education and Digital Development” (Chicago, IL)

Project AHEADD – Access to Health Education and Digital Development will enable the CORE Foundation and the John H. Stroger, Jr. Hospital of Cook County Academic Center Library (ACL) to enhance the HIV/AIDS electronic health information and resources of the Ruth M. Rothstein CORE Center Resource Center (RC). The project will (1) provide the RC with technology solely designated for electronic HIV/AIDS health education; (2) provide computer, internet and electronic HIV/AIDS health resources training to Adult Peer Educators working at the CORE Center who will guide clients in the library; and (3) enhance the current electronic HIV/AIDS health resources available to staff and clients who utilize the RC and are either infected, affected or at-risk for becoming infected with HIV/AIDS. This project is an expansion and enhancement of a previously funded NLM funded project, COMET to the Community. The community will be trained to use COMET and other HIV/AIDS resources in order to access quality health information.

Homes for Hope “Peer to Peer Data Guides: Transgenders and Young Questioning MSM” (Washington, DC)

Homes for Hope (HFH) is a nonprofit organization founded to provide supportive housing to people infected and affected by HIV/AIDS, especially minorities and women in Washington, DC. Presently, clients receive computer training through a program as a result of collaboration with the Partnership for Health Program which is funded by NLM. The Peer to Peer Data Guides project will address the informational needs of two client groups, transgender (TG) and young men who have sex with men (MSM) that have historically been disconnected from vital HIV/AIDS information due to societal barriers. HFH will develop a basic computer skills and Internet training program to include participant training manuals and materials for the client groups. HFH will train clients on basic computer skills, accessing HIV/AIDS resources relevant to TG and MSM groups, and provide peer led Internet data sessions and searches at the HFH facilities and at several partner agencies. The HFH will also develop a webpage to provide information on HIV/AIDS topics relevant to TG and young questioning MSM.

Hope House Day Care Center “Hope for Families for Life Phase II” (Memphis, TN)

Hope House Day Care Center, founded by the Junior League of Memphis in 1994, has a mission to improve the quality of life of HIV-impacted children and their families by addressing their educational, social, and psychological and health needs. In 2002, the NLM funded the Hope for Families for Life Phase I project to establish a library/computer resource center. Phase II of the Hope for Families for Life project will offer the day care centers’ administrators, teachers, staff, parents, volunteers, and community members access to computers for HIV/AIDS information searches, in-service workshops, presentations, and library resources. Hope House Day Care Center on the Web:

Houston Academy of Medicine-Texas Medical Center Library “Project St. Hope: An HIV/AIDS Community Information Outreach Project” (Houston, TX)

Project St. Hope is designed to facilitate access to electronic HIV/AIDS information resources, and is a collaborative effort involving the Houston Academy of Medicine-Texas Medical Center Library, the Center for AIDS Information & Advocacy, and St. Hope Foundation. St. Hope Foundation operates three HIV/AIDS outpatient clinics in the greater Houston area. Project funds will be used to 1) purchase and set up a mobile computer lab that can be circulated between the three clinics, 2) provide training on the use of electronic HIV/AIDS information resources for staff members, 3) and purchase computers for social workers to introduce HIV/AIDS information resources into the client intake process. A series of five themed presentations will be delivered at each of the three clinics by the HIV/AIDS educator and the health sciences librarian regarding topics related to HIV/AIDS and electronic information resources. The Houston Academy of Medicine-Texas Medical Center Library on the Web:

Internet Sexuality Information Services, Inc. “Advancing HH: Online HIV/AIDS Information Access in San Francisco’s Castro District” (Oakland, CA)

Internet Sexuality Information Services (ISIS), a non profit organization whose mission is to use technology for sexual health promotion and disease prevention, has joined together with Magnet, a gay men’s health center in the Castro, to implement the Advancing HH project. Advancing HH: Online HIV/AIDS Information Access in San Francisco’s Castro District is a project designed to improved HIV/AIDS information access for the community of men who have sex with men in San Francisco. Advancing HH will also be available to men around the world who look to San Francisco for cutting edge, up-to-date education about gay men’s health issues, especially HIV/AIDS information. Funding from NLM will provide ISIS the resources to increase the number and speed of computers and networks at the Magnet storefront and expand and update the health section of the website with detailed, up-to-date, and culturally relevant information about HIV/AIDS. The Internet Sexuality Information Services, Inc. on the Web:

Magnolia Coastlands Area Health Education Center “Southeast Georgia AIDS Info Link (SEaGAIL)” (Statesboro, GA)

The Magnolia Coastlands AHEC (MCAHEC) is a private, non-profit, community-based organization that is committed to providing high quality, accessible, educational programs and services designed to meet the specific needs of the health care practitioners, students, and health professions' faculty residing and working in its 39 county service area. The goal of SEaGAIL is to improve access to HIV/AIDS related information by libraries, health professionals, community-based organization staff and persons affected by HIV/AIDS through electronic and print resources and training. Project SEaGAIL will 1) improve information retrieval to electronic HIV/AIDS and other health related information resources, 2) enhance skills development by providing training on accessing HIV/AIDS information resources to staff of public libraries, public health, community-based organizations and to persons affected by HIV/AIDS, 3) enhance document access through facilitating interlibrary loan requests and providing document retrieval services, and 4) develop on-line tutorials that will assist individuals in accessing HIV/AIDS resources. The project will build on services that were established by the SEaGAIL project funded by NLM in 2002.

Regents of the University of New Mexico/Health Science Center/School of Medicine/ Department of Internal Medicine “AIDS InfoNet” (Albuquerque, NM)

The New Mexico AIDS InfoNet is an on-line HIV/AIDS information resource, providing fact sheets on treatment and related information in non-technical language, in both English and Spanish. Although originally designed to serve the HIV community in New Mexico, the InfoNet has grown into a national and international resource. Fact sheets are viewed over 300,000 times each month, including significant usage from outside of the United States. Funding from NLM will support the ongoing maintenance of the existing fact sheet collection and development of selected additional topics. In addition, the InfoNet will collaborate with selected AIDS Service Organizations to arrange for translation of fact sheets into additional languages. In collaboration with the University of New Mexico Health Sciences Center Library, the InfoNet web site will be publicized to audiences of public librarians and medical librarians. The New Mexico AIDS InfoNet on the Web:

Ruth Lilly Medical Library, Indiana University School of Medicine “Indiana HIV/AIDS Community Information Outreach Project” (Indianapolis, IN)

The Indiana HIV/AIDS Community Information Outreach (IHACIO) Project goal is to improve HIV/AIDS health information use and access for HIV/AIDS health care professionals, patients and the affected communities as well as the general public in Indiana. The project plans to 1) provide training sessions on accessing HIV/AIDS information resources to health care professionals throughout the state, 2) develop a CD-ROM tutorial and web-based tool kit to serve as an adjunct to the training; and 3) exhibit at local minority health fairs in an effort to promote the resources and services available through the project.

Express Award Projects

AIDS Response Seacoast “HIV/AIDS Community Information Outreach 2006” (Portsmouth, NH)

The AIDS Response Seacoast was established in 1987 as a non-profit, community-based organization and provides assistance, education and advocacy for persons and communities affected by HIV/AIDS. Funding from the NLM will support the production of brochures detailing information regarding the programs and services offered by both the Client Services Department and the Prevention and Education Department of the AIDS Response Seacoast. The project will also develop and distribute pamphlets including information about prevention, transmission, treatment options, and HIV co-infection of Hepatitis-C. The AIDS Response Seacoast on the Web:

AIDS Survival Project “FOCUS” (Atlanta, GA)

Project FOCUS, an initiative of the AIDS Survival Project’s HIV Treatment Education Program, will create a curriculum for Internet-based HIV education and provide people living with HIV with access to the latest information on HIV therapy. The HIV Treatment Resource Center’s staff and trained volunteer peer educators will assist clients in learning the skills necessary to navigate computers and the Internet, and to evaluate the legitimacy and relevance of treatment information. The program will conduct quarterly “Skills Building” + “Health Choices” - “Health Lives” workshops and present public HIV treatment forums targeting HIV affected populations and care providers.

Coharie Intra-Tribal Council “Coharie Indian HIV/AIDS Mini Conference” (Clinton, NC)

The goal of the “Coharie Indian HIV/AIDS Mini Conference” project is to provide HIV/AIDS information and education primarily to the Coharie Indian populations, but also to Indians throughout North Carolina. The Coharie Intra-Tribal Council will collaborate with the Tri-County Community Health Center, Sampson Health Department, Harnett Health Department, and the Healing Lodge to plan and coordinate the Coharie Indian HIV/AIDS Mini Conference. The mini-conference will include presentations by health professionals and researchers, and will also provide consumers with information regarding HIV/AIDS resources and services.

Columbus AIDS Task Force “Sexuality Education: Empowering Youth” (Columbus, OH)

The Columbus AIDS Task Force is a community-based organization serving a diverse community of more than 1,000 HIV positive clients in central Ohio. In collaboration with the Ohio AIDS Coalition, Planned Parenthood of Central Ohio, and the Kaleidoscope Youth Center, the CATF plans to address the urgent need for information on HIV/AIDS transmission in the youth community. The project will promote the wealth of information housed in the CATF Resource Library by effectively disseminating the information to local high-risk youth populations. The Sexuality Education: Empowering Youth project will 1) form a communication/referral network among health, wellness and youth organizations to share/disseminate comprehensive HIV/STD information and make service and education referrals, 2) train youth and youth educators on how to search for and evaluate HIV/AIDS information on the web, and 3) provide health information support to CATF’s youth Speakers Bureau to present/disseminate information on sexual health issues to their peers.

Community Impact, Inc. “AIDS Integrated Information Network” (Yazoo City, MS)

The Community Impact, Inc., a non-profit organization, strives to improve the quality of life for individuals in the Delta Region through advocating on their behalf and promoting the development of community-based systems of health and social services related to HIV/AIDS. The purpose of the AIDS Integrated Information Network is to enhance technology in rural and underserved communities of color and increase access to HIV/AIDS information and resources in the Mississippi Delta Region. Community Impact, Inc. will collaborate with the Youth VineYard, Mississippi Department of Education, and the Mississippi Department of Health to establish community distribution centers know as “drop-in” centers. These centers will provide consumers with computer workstations with Internet access and assistance in accessing HIV/AIDS resources and services.