Access to Electronic Health Information Projects Funded by the National Library of Medicine, 2003
State of Alaska Department of Health and Social Services
Division of Public Health
Project Director: Patricia Owen
Phone: 907-465-3140; FAX: 907-465-2770
The purpose of this project is to ensure that health professionals, their patients and the general public in Alaska are connected to the health information resources they need to make informed health care decisions. The project will link to the resources of the Alaska Health Education Library Project and its partner libraries.
Good Samaritan Regional Medical Center
Project Director: Sally A. Harvey
Phone: 602-239-4353; FAX: 602-239-3493
The Good Samaritan Regional Medical Center will provide training in accessing current and authoritative HIV/AIDS information for staff, volunteers, and clients at nearby Body Positive, a support agency for HIV positive individuals in the Phoenix metropolitan area. Special classes will be developed and taught to the bilingual staff members at Body Positive. Document delivery will be offered during the project via Loansome Doc.
California State University
Henry Madden Library
Project Director: Patrick Newell
Phone: 599-278-5182; FAX: 559-278-6952
The Central Valley Access to Electronic Health Information Project will provide training for librarians and other information intermediaries for the public on major Internet-accessible consumer health, clinical trials, and medical research information tools. Groups to be reached include community-based organizations, school library educators, and librarians in four central California counties, Madera, Fresno, Kings, and Tulare. Training sessions will be conducted and a Web site that provides access to local and national health information resources will be created.
San Diego State University
San Diego, CA
Project Director: Renee P. McLeod
Phone: 619-594-6173; FAX: 619-594-2765
This project will provide the tools and skills necessary for school nurses in San Diego and Imperial Counties to access and evaluate current health information and to enhance their role as resources for families and researchers in the community. San Diego State University's Library and Information Access and School of Nursing will partner with the California School Nurses Organization, San Diego/Imperial Section. The project involves a needs assessment of the area school nurses; provision of Personal Digital Assistants (PDA's) to a selected group of school nurses; training sessions on the use of PDA technology; and a Web site to facilitate training, communication, and resource location. The project will examine whether the use of handheld technology improves the anticipated outcomes for the group of nurses using the PDAs.
Denver Public Library
Project Director: Elaine Connell
Phone: 720-865-1363; FAX: 720-865-1481
This project will develop a consumer level Web site in English and Spanish, hosted and fully integrated on the Denver Public Library Web page. The target population for this site is residents of Denver's Whittier neighborhood. This project will do an in-depth community needs analysis, research appropriate Web resources, and facilitate community outreach. Links to MedlinePlus, ClinicalTrials.gov, TOXNET, and PubMed will be provided. Training will be provided in both English and Spanish for DPL staff, community leaders, and individual customers.
Poudre Valley Health System
Fort Collins, CO
Project Director: Gerald Carlson
Phone: 970-495-7323; FAX 970-495-7652
This project collaborates with Berthoud Public Library, Estes Park Public Library, Red Feather Lakes Community Library, and Wellington Public Library to connect consumers to health information resources they need to make informed health care decisions. The target population is the underserved consumers in rural and geographically isolated communities along Colorado's northern Front Range. Enhanced access to electronic health resources will be provided through training to staff, volunteers, and patrons.
District of Columbia
Public Health Foundation
Project Director: Elizabeth Arriaza
Phone: 202-898-5600: FAX: 202-898-5609
The Public Health Foundation will migrate its current Web site to a hosting service with better functionality, establishing more detailed utilization tracking and developing a full site search capability. This migration will ensure a better interface that would improve access to information for users and reduce staff maintenance requirements.
University of South Florida
School of Library and Information Science
Project Director: Cheryl Rae Dee
Phone: 813-974-6361; FAX: 941-688-9829
This project will directly teach seniors to gather medical information independently, train public librarians to teach seniors about medical searching and begin to gather information about the medical information needs and medical information seeking behavior of senior citizens. The Polk County Library Cooperative, Lakeland Public Library and Day Treatment Program of Peach River Center in central Florida will partner for the project.
Hawaii Medical Library
Project Director: John Breinich
Phone: 808-536-9302; FAX: 808-524-6956
This project will create an Internet portal to ensure that Hawaii's population can easily locate authoritative health information resources specific to their needs. This project will strengthen and develop the existing partnership between Hawaii Medical Library and the Hawaii State Public Library System and build a collaboration with the University of Hawaii's Department of Native Hawaiian Health, the Native Hawaiian Center of Excellence, and Papa Ola Lokahi. The Hawaii Health Portal will include links to health information resources of special interest to the Native Hawaiian population. Public librarians, as well as health professionals and educators serving the Native Hawaiian population, will be trained to use the portal and will teach others to use it.
Kootenai Medical Center Library
Coeur d' Alene, ID
Project Director: Marcy Horner
Phone: 208-666-2483; FAX: 208-666-2854
Kootenai Medical Center (KMC) Library will partner with four representative senior groups, the Lake City Senior Center in Coeur d'Alene, the Post Falls Senior Center in Post Falls, the Rathdrum Senior Center in Rathdrum, and the Senior Striders to improve access to electronic health information resources by senior citizens living in northern Idaho. A "senior friendly" Web page will be created with appropriate support and self care instructions for common diagnoses encountered by senior citizens and with links to MedlinePlus. Computer training and Internet access will be provided at these centers.
OSF Saint Francis Medical Center
Library and Resource Center
Project Director: Carol Galganski
Phone: 309-655-2268; FAX: 309-655-6997
This project will improve access to quality health information resources by strengthening the partnership between the OSF Center for Health Resource Library and the OSF Saint Francis Medical Center Parish Nurse program. The project plan includes having the OSF Resource Library consumer health librarian teach four new parish nurses how to search for quality health information on the Internet and the parish nurses will in turn teach their parishioners how to access the same sites for quality health information.
University of Kansas School of Medicine
Project Director: Teresa R. Coady
Phone: 316-293-3437; FAX: 316-293-2608
The University of Kansas School of Medicine-Wichita Medical Library and the Kansas State University College of Veterinary Medicine Medical Library, two multi type libraries, will use technology to educate public health workers about human and animal health information. Funds will be used to develop a Web site of current, relevant and authoritative information. The target audience which includes local health department workers, nurses, veterinarians, and sanitarians will be trained in using NLM's online resources.
Shady Grove Adventist Hospital
Project Director: Michael A. Franklin
Phone: 301-279-6516; FAX: 301-279-6500
Shady Grove Adventist Hospital will provide a customized Oncology Unit Web site and a PC touch screen tablet computer accessible at the patient's bedside. The project will enable patients and family members to access health information Web sites through a convenient, easy to use format, and encourage meaningful discussions between patients and the health care team. The Patient Advisory Group members who are immediate family members of former patients will provide Internet instruction.
Western Maryland AHEC
Project Director: Kery C. Hummel
Phone: 301-777-9150; FAX: 301-777-2649
Western Maryland Area Health Education with their partner the Consortium for Health Information Libraries Outreach (CHIL_Out) will ensure that health professionals, their patients and the general public of western Maryland are connected to the health information resources they need to make informed health decisions. They will provide training sessions to the targeted groups to increase search and evaluation skills, redevelop the existing WM Infohealth Web site into an interactive database driven Web site for ease of use, and increase awareness and knowledge of NLM resources and services.
Massachusetts General Hospital
Project Director: Elizabeth Schneider
Phone: 617-724-2791; FAX: 617-726-6784
ARCH (Access to Resources for Community Health) is a collaborative project among four partners serving communities in and around Boston, MA. The purpose of ARCH is to increase electronic access to quality health information and resources in underserved, urban communities of Charlestown, Chelsea, Everett and Revere. This proposal expands the coverage of the ARCH project to include Head Start programs affiliated with Community Action Program InterCity, Inc. (CAPIC) and the JFK Family Center and the Chelsea Square Apartments.
University of Massachusetts Medical School
The Lamar Soutter Library
Project Director: Elaine R. Martin
Phone: 508-856-2399; FAX: 508-856-5039
The Central Mass Access to Child Health Information (CATCH) project will provide community-based, public health agency staff and their clients with training to locate and effectively use quality electronic health information resources. This outreach program will target public health agencies in Central Massachusetts that serve chronically ill and/or developmentally disabled children and their families.
World Education, Inc.
Project Director: Sally Waldron
Phone: 617-482-9485; FAX: 617-482-0617
The purpose of the Plain Language Health Information Project is to build the capacity of the adult basic education system in Massachusetts and throughout new England to access reliable, relevant, plain language health information that adults hampered by limited literacy skills can understand and use. Adult literacy classrooms provide a critical opportunity to reach thousands of disadvantaged families with relevant health information.
J. Otto Lottes Health Sciences Library
University of MO-Columbia
Project Director: Deborah Ward
Phone: 573-882-6280; FAX: 573-884-1421
This project will enhance the development of the librarian segment of the Family Practice Inquiries Network (FPIN). The project will create an online training program for librarians new to the Clinical Inquiries co-authoring process. It will define a credentialing program for medical librarians working as Clinical Inquiries co-authors that would provide a common baseline of understanding for the FPIN librarian community. Emphasis would be on understanding of the principles of evidence based medicine (EBM) and literature retrieval specific to EBM.
University of Medicine and Dentistry of New Jersey (UMDNJ)
Project Director: Judith Cohn
Phone: 973-972-4353; FAX: 973-972-7474
This project provides training in the use of Web-based health information tools to health care professionals and librarians who work with substantial Hispanic communities. In addition to training, printed materials will also be developed in Spanish and distributed to the targeted sites and associated communities. Additional distribution to community and faith-based organizations and sites in which there is a Spanish-speaking population is also included in the project.
Crandall Public Library
Glens Falls, NY
Project Director: Jo-Ann M. Benedetti
Phone: 518-972-6508; FAX 518-792-5251
This project will increase accessibility to online consumer health information for public librarians through participating library systems and encourage partnering with local institutions for support. It will address the need for reliable information by providing training to an estimated 120 librarians in six library systems on consumer health online reference sources. The Health Information Librarian at Crandall Public Library will provide a four-part training series for librarians at each participating system, enabling the librarians to earn 12 hours of MLA CE credits in consumer health.
New York University School of Medicine
Frederick L. Ehrman Medical Library
New York, NY
Project Director: Kathel Dunn
Phone: 212-263-8535; FAX: 212-263-6534
NYU Downtown Hospital, an affiliated hospital of the New York University School of Medicine, is the primary health care facility for the neighboring Chinatown community. Identifying a need to easily access in-house Chinese language patient education documents and existing electronic consumer health information, NYU created the Health Information in Chinese Uniting Physicians, Patients, and the Public (HICUP), to link the mostly English-speaking clinicians and their Chinese-speaking patients with evaluated sources of electronic patient education and consumer health information that is culturally appropriate, clinically accurate, and current. The project involves a partnership between NYU Downtown Hospital and the Chinese Community Partnership for Health, to translate information not previously available in Chinese and link to Chinese information from other sites.
Rochester Regional Library Council
Project Director: Kathleen M. Miller
Phone: 585-232-7570; FAX: 585-223-7712
The two main components of "CLIC and the City" will be Web site development and training. The Web site development will concentrate on providing more local information and linking the local to the national information in MedlinePlus. The training will focus on developing the next level of partnership between two groups of underserved health information providers in the city: school librarians and school nurses, and senior centers and nearby branch public libraries. The impact/evaluation of "CLIC and the City" will be measured using various methods including focus groups, statistics, and Web site activity.
Tompkins County Public Library
Project Director: Suzanne Smith Jablonski
Phone: 607-272-4557; FAX 607-272-8111
The Tompkins County Public Library provides residents with access to reliable, current medical and health information to support their self-advocacy efforts through the only dedicated Health Information Center in the five-county Finger Lakes library system. This project will provide training for the public in how to access the information available through the Tompkins County Public Library Web site, and about the value of consumer health information.
Mountain Area Health Education Center
Project Director: Joan Colburn
Phone: 828-257-4438; FAX: 828-258-2099
The Mountain Area Health Education Center will collaborate with regional community colleges and university librarians in the 16 county region of rural western North Carolina, to improve access to electronic health information for the region's healthcare students, the future healthcare providers. The MAHEC will train healthcare program college and university students, faculty and librarians in the use of PubMed, MedlinePlus, NC Health Info and NC Live, as well as, provide Loansome Doc services for graduate level program participants.
Children's Hospital Medical Center of Akron
Project Director: Cheryl Libertin
Phone: 330-543-3237; FAX: 330-543-8127
The Family Resource Center, a pediatric consumer health library located at Children's Hospital Medical Center of Akron, will enhance consumer health literacy by increasing consumer and health professional awareness of the Internet as a health information source. A computer classroom at the hospital will be used for training of health professionals and community support groups. A laptop computer and digital projector will be employed for off-site classes at 6 branches of the Akron-Summit County Public Library.
Carnegie Library of Pittsburgh
Project Director: Charmaine Mozlack
Phone: 412-665-2101; FAX: 412-665-2641
The Carnegie Library of Pittsburgh (CLP), in partnership with three local agencies, will establish a program to train senior adults to locate and use electronic health information, including the Web resources of the NLM. CLP will collaborate with Lutheran Service Society of Western Pennsylvania (LSS), and City of Pittsburgh's Citiparks SeniorInterests activity centers. The goal of the program is to promote reliable electronic resources to seniors in underserved communities by collaborating with faith- and community-based organizations through existing partnerships with LSS and the SeniorInterests program.
Geisinger Health System
Community Health Resource Library
Project Director: Valerie A. Gross
Phone: 570-271-5638; FAX: 570-271-5635
This project will increase access to quality and valid health information by the promotion of trusted resources available via the Internet, public libraries in the North Central Library District (NCLD), and the Community Health Resource Library of the Geisinger Health System. A one-day conference on health information services will be held at Geisinger for the 45 librarians in the eleven county region of the North Central Library District, followed by targeted programs for health consumers and health professionals at 12 public libraries in five rural counties. The project will increase the collaborative interaction of the public and public librarians with Geisinger's Community Health Resource Library, providing free access to document delivery through Geisinger's Health Sciences Library, an NN/LM Resource Library.
University of Pittsburgh
Health Sciences Library System
Project Director: Barbara A. Epstein
Phone: 412-648-2036; FAX: 412-648-9128
This project will develop a partnership between the Health Sciences Library System (HSLS) of the University of Pittsburgh and the Allegheny County Health Department (ACHD) for enhanced access to knowledge-based information, document delivery, reference assistance, user education, and consultation. Objectives include developing a Web-based public health information portal for access to relevant local, state, national, and international information resources; comprehensive, ongoing user education and an information literacy program for ACHC public health workers; ongoing reference and consultation services, and access to books, journals and other resources.
University of Tennessee Health Science Center
Health Sciences Library and Biocommunications Center
Project Director: Priscilla L. Stephenson
Phone: 901-448-5401; FAX: 901-448-7235
The WebHealth for Seniors project will partner senior health centers in Memphis with the Health Sciences Library of the University of Tennessee Health Sciences Center, the Medical Library of the Department of Veterans Affairs Medical Center at Memphis, and the Medical and Cancer Resource Center of St. Francis Hospital. Small group training sessions at the centers as well as demonstrations at St. Francis Hospital will introduce seniors to the vast array of health information on the Internet and enable them to identify accurate and credible resources.
Texas Woman's University
Project Director: Jeffrey T. Huber
Phone: 713-794-2312; FAX: 713-794-2852
Texas Woman's University, the Houston Academy of Medicine-Texas Medical Center Library, and Camp For All (CFA) will partner to facilitate access to electronic health information at CFA camping facility. CFA is a barrier-free camp working in partnership with organizations to enrich the lives of children and adults with chronic illnesses and disabilities and their families by providing camping and retreat experiences. Internet-connected workstations will be placed at CFA's health center. The CFA staff will be trained on locating and using electronic health information resources. The CFA staff will support the information needs of the Camp For All Campers.
University of Utah
Spencer S. Eccles Health Sciences Library
Salt Lake City, UT
Project Director: Liz Workman
Phone: 801-581-4686; FAX: 801-581-3632
The proposed project would provide online audio access to many health brochures in many different languages. Project staff will locate qualified narrators to read aloud approximately 200 multilingual health publications already available online in a visual, pdf format. These 200 pdf documents are available through the 24 Languages Project (<<A href="http://medstat.med.utah.edu/24languages" />http://medstat.med.utah.edu/24languages>). These readings will be recorded, digitized, and prepared for Web-based availability, adjacent to the existing pdf documents. Listeners would access the recordings through the project's Web site. The project's expected outcome would be access to health information for the visually impaired and individuals with literacy deficits in English or a native language, both regionally and worldwide. It would provide previously inaccessible information to a very large audience.
Edward-Via-Virginia College of Osteopathic Medicine
Project Director: Bruce Dubin
Phone: 540-443-9106; FAX: 540-443-9119
The Virginia College of Osteopathic Medicine plans to increase access to health information and improve health literacy for underserved regions in Appalachia. A partnership formed between the College, the Montgomery Floyd Regional Libraries and the Blacksburg Electronic Village (BEV) will facilitate training in the access of health information via computer for consumers and healthcare providers within Montgomery and Floyd counties and Southwest Virginia. This project will support improved decision making in the areas of consumer health, public health, health education and professional development by increasing both knowledge and utilization of library resources via the Internet.
University of Virginia Health System
Claude Moore Health Sciences Library
Project Director: Ann Duesing
Phone: 434-924-5464; FAX: 434-982-4238
The University of Virginia Claude Moore Health Sciences Library, through its outreach program at Wise, Virginia, proposes to extend access to current electronic cancer information resources from the Mountain Laurel Cancer Center to public libraries in Lee, Scott, Wise and Dickenson counties and the city of Norton in southwestern Virginia. In addition to cancer information, training will be provided to public library staffs and their patrons on more general health information. There will be easy access to health information from quality-filtered resources through a Web are developed and linked to the UVA Health Sciences Library Outreach page.
African Americans Reach and Teach Health Ministry
Project Director: Mary Diggs-Hobson
This project will provide the African Americans Reach and Teach Health Ministry (AARTH) with the tools and resources necessary to access culturally relevant health information. The project will establish and equip the faith based health ministry network with an infrastructure to increase awareness and knowledge about prevention and health care, and promote responsible health choices and practices. A user-friendly Web site with links to culturally relevant health information will also be developed.
Children's Hospital and Regional Medical Center
Center for Children with Special Needs
Project Director: Nanci Larter
Phone: 206-527-5733; FAX: 206-527-5705
The purpose of this project is to train parents of children with special health care needs to advance their skills and abilities in using the Internet to seek health information and resources. In partnership with the Washington State Fathers Network and Washington State Parent to Parent, the Center for Children with Special Needs at Children's Hospital and Regional Medical Center in Seattle will develop a skills-based train-the-trainer curriculum with parent input that will provide the basis for Internet training on accessing health information and resources.
Public Health - Seattle and King County
Health Education Materials Program
Project Director: Elizabeth Comstock
Phone: 206-296-4354; FAX: 206-296-4379
The Health Education Materials Program (HEM) of Public Health - Seattle and King County (PHSKC) will collaborate with Washington State Department of Health (DOH) Office of Health Promotion's Health Education Resource Exchange (H.E.R.E.) to provide electronic access to reviewed health education materials. This project will create the Online Reviews of Health Education Materials (ORHEM) using the database of health education materials maintained by the Health Education Materials Review Committee of Public Health - Seattle and King County. It will expand understanding of the effective use of selected health education materials among health and human services providers by providing access to HEM review comments, previously unavailable in print catalogs or outside of King County, and by the online inclusion of review standards.
St. Michael Hospital Library
Project Director: Vicki Kuenzi
Phone: 414-527-8477; FAX: 414-527-5418
St. Michael Hospital has plans to establish a nurse-managed clinic on the property of Holy Redeemer Church in early 2003 to provide essential health services to the congregation and residents of the surrounding community. St. Michael Library will complement this partnership by providing library support to health consumers and caregivers through electronic access to credible health information resources at the clinic site. The target population has a high percentage of minorities and significant numbers of children under the poverty level.