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American Board of Genetic Counseling is the credentialing organization for the genetic counseling profession in the United States and Canada.

American Board of Medical Genetics and Genomics (ABMGG) promotes standards of excellence in medical genetics. The ABMG fosters life-long learning and accredits training programs, credentials and certifies practitioners of medical genetics.

American College of Medical Genetics (ACMG) provides education and resources about medical genetics topics including genetic disorders. The ACMG also provides a “find genetic services” service, and information about careers in the medical genetics field.

The American Congress of Obstetricians and Gynecologists (ACOG), a professional organization of physicians, advocates for quality healthcare for women and promotes public awareness of women’s healthcare issues. ACOG maintains a list of links to genetics and genomics resources titled WEBTREATS: Genetics and Genomics.

American Indian and Alaskan Native Genetics Resource Center is sponsored by the National Conference of American Indians (NCAI). The site includes information about genetics, tips for tribal leaders, tribal enrollment and DNA testing and other information valuable for the community. Information is available for tribes and researchers.

American Society of Human Genetics (ASHG) is a professional organization for people in careers related to human genetics worldwide. The ASHG links to Genetics Resources for Health Providers, including a glossary of genetic terms and “quick reference” resources.

Ask the expert. WHO Human Genome Programme HGN Expert Group is comprised of selected professionals in genetics and related disciplines who are committed to the development of genomics, public health systems and public engagement in the development of science and technology.

CDC Office of Public Health Genomics (OPHG) provides information for the translation of genomics research into population health benefits.

The Center for Bioethics & Human Dignity (CBHD) is a Christian bioethics research center at Trinity International University that explores the nexus of biomedicine, biotechnology, and our common humanity. Links include a Genetic Ethics Bibliography and other online resources.

Center for Genetics and Society is a nonprofit information and public affairs organization that encourages responsible uses and effective societal governance of human genetic and reproductive technologies. Staff works with a network of scientists, health professionals, civil society leaders, and others.

Center for Jewish Genetics is an educational and screening resource for Jewish genetic disorders and hereditary cancers.

The DNA Learning Center (DNALC) is the world's first science center devoted entirely to genetics education and is an operating unit of Cold Spring Harbor Laboratory, an important center for molecular genetics research. The Dolan DNALC, DNALC West, and Harlem DNA Lab extend the Laboratory's traditional research and postgraduate education mission to the college, precollege, and public levels, Cold Spring Harbor Laboratory;c2002 - .

European Society of Human Genetics is a non-profit organization to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe.

Evaluation of Genomic Applications in Practice and Prevention (EGAPP) supports development of a systematic process for assessing available evidence regarding the validity and utility of rapidly emerging genetic tests for clinical practice. This independent, multidisciplinary panel prioritizes and selects tests, reviews CDC-commissioned evidence reports and other contextual factors, highlights critical knowledge gaps, and provides guidance on appropriate use of genetic tests in specific clinical scenarios. EGAPP Resource Quick links to categories below:

  • Systematic, Evidence-Based Review of Genetic Tests
  • Genetic Testing Regulation and Policy
  • Guidelines for Genetic Testing
  • Genetic Counseling Services
  • Patient Advocacy
  • Professional Organizations Related to Genetic Testing
  • Educational Resources
    • Genetic Testing
    • Evidence-Based Medicine

EGAPP c2009, reviewed 2013 Nov 20.

Genetic Alliance is a network of 1,200+ disease-specific advocacy organizations, thousands of universities, private companies, government agencies, and public policy organizations. The network an open space for shared resources, creative tools, and innovative programs.

Genetic Alliance UK is a national charity working to improve the lives of patients and families affected by all types of genetic conditions.

Genetic and Rare Diseases (GARD) Information Center provides access to current, reliable, and easy to understand information about genetic and rare diseases in English and Spanish. National Center for Advancing Translational Sciences (NCATS), National Institutes of Health Office of Rare Diseases Research.

Genetic Science Learning Center is a science and health education program whose mission is making science easy for everyone to understand by providing educational materials and programs for global and local audiences. Learn.Genetics has educational materials on genetics, bioscience and health topics for students, teachers and the public and Teach.Genetics has resources for educators including PDF-based Print-and-Go™ activities, unit plans and other material. University of Utah; c2014.

Genetics Education Center links to Library Resources/Genetics and other resources. University of Kansas Medical Center; c1995-2012.

Genetics Society of America (GSA) seeks to foster a unified science of genetics and to maximize its impact. This site is mainly for genetics professionals, but resources under the Education tab are for individuals interested in exploring more in-depth information about genetics.

Genomics Information Needs Project was designed by library staff at Becker Medical Library to understand information needs in the medical and research environment through a survey-based needs assessment and focus groups. Washington University School of Medicine, St. Louis, Missouri; c2014

The Health and Medicine Division (HMD) of the National Academies of Sciences, Engineering, and Medicine Roundtable on Genomics and Precision Health (previously called the Roundtable on Translating Genomic-Based Research for Health) brings together leaders from government, academia, industry, foundations, associations, patient communities, and other stakeholder groups to meet and discuss global issues surrounding the translation of genomics and genetics research findings into medicine, public health, education, and policy. National Academy of Sciences; c2016, updated 2016 May 26.

Human Genetics programme, aims to provide information and awareness within the health sector, government and the public on the health challenges and opportunities within the science of human genetics. The website provides overviews of issues and concerns around human genetics and public health, and, in particular, the ethical, legal and social implications (ELSI) of genetics. World Health Organization; c2014.

Human Genome Organisation (HUGO) investigates the nature, structure, function and interaction of the genes, genomic elements and genomes of humans and relevant pathogenic and model organisms; characterization of the nature, distribution and evolution of genetic variation in humans and other relevant organisms; the relationship between genetic variation and the environment of human populations and the causes, diagnoses, treatments and prevention of disease; and more including social, legal, and ethical issues related to genetic and genomic information and championing the regionally-appropriate, ethical utilization of this information for the individual and the society.

Human Genome Variation Society (HGVS) aims to foster discovery and characterization of genomic variations including population distribution and phenotypic associations.

The International Society of Nutrigenetics / Nutrigenomics increases understanding of the role of genetic variation and dietary response, and the role of nutrients in gene expression.

March of Dimes researches problems that threaten babies and work on preventing them, including genetic birth defects; c2014., the Mountain States Genetics Foundation site, provides information and education regarding genetic services to individuals throughout the Rocky Mountain West.

National Human Genome Research Institute (NHGRI) is the part of the National Institutes of Health which funds & supports genetics research in the United States and educates people about human genetics, links to other sources of information. This is a good page to begin to find information about what is currently known about genetics and genomics; updated 2013 Jul 1.

The National Newborn Screening and Global Resource Center (NNSGRC) provides newborn screening information globally for health professionals, the public health community, consumers and government officials. Austin, TX: The University of Texas Health Science Center at San Antonio; c2012-2013, updated 2013 Oct 4.

The National Society of Genetic Counselors (NSGC) promotes professional interests of genetic counselors and provides a network for professional communication.

Personal Genetics Education Project members examine the use of genetic information in the public domain, suggest readings, and develop and share curricular materials designed for high school and college students as part of their outreach. Boston; Harvard University; c2010.

Public Health Genomics (OPHG) is a source of information for translation of genomics research into population health benefits. Centers for Disease Prevention and Control; reviewed: 2014 Jan 8, frequent updates.

Scripps Genomic Health Initiative (SGHI) is the first large-scale and long-term evaluation of the attitudes and perceptions of consumers who purchased a commercially available personal genomic risk assessment test. Scripps Translational Science Institute is supported through the National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program, led by the NIH National Center for Advancing Translational Sciences (NCATS). La Jolia, CA: STSI – Scripps Translational Science Institute; c2014.

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