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National Information Center on Health Services Research and Health Care Technology (NICHSR)

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Introduction to Health Services Research : A Self-Study Course

Case Description | Case Background | Case Objectives | Case Exercise

Case 5: HIV/AIDS, the AIDS Drug Assistance Program (Page 5 of 38)
Phase One: Thinking About the Issues

Q1. Who are the stakeholders affected by rising costs of HIV/AIDS drug therapy?

Suggested Solution

The following groups of people should be considered stakeholders:

  • People with HIV/AIDS and their families and friends
  • private health insurers
  • employers
  • pharmaceutical companies
  • Medicare
  • Medicaid
  • other HHS agencies such as the Veterns' Affairs
  • state health departments
  • state budget offices
  • state legislatures
  • community-based organizations
  • those employed in the U.S. health care system
  • others

Who has been left off this list that you can think of? Why should we include them in such a list? Why?

But, who are the people who have HIV/AIDS? HIV/AIDS sufferers can be identified in the aggregate by going to StateHealthFacts.org and looking at the Total HIV/AIDS Federal Funding, FY2005 page. At this time FY2005 is the most current date for this data. As you will recall StateHealthFacts.org is maintained by the Kaiser Family Foundation.

On this page you will find links to cumulative and new AIDS cases, annual AIDS case rate, persons living with AIDS, deaths, and of course, information on funding, the Ryan White Program, and the AIDS Drug Assistance Program (ADAP). Data is presented in tables and in maps and includes year the data was published.

This is an immensely important site for locating aggregate information on many AIDS-related topics.

Next question...

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