National Institutes of Health
- The primary NIH organization for research on Rare Diseases is the NIH Office of Rare Diseases
A rare disease is one that affects fewer than 200,000 people in the United States. There are nearly 7,000 rare diseases. More than 25 million Americans have one.
It can be hard to find a specialist who knows how to treat your rare disease. Disease advocacy groups, rare disease organizations, and genetics clinics may help you to find one.
NIH: National Institutes of Health
References and abstracts from MEDLINE/PubMed (National Library of Medicine)