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"Breath of Life" Exhibition Examines Asthma From Many Angles
You're Invited to Visit in Person or to Take a Virtual Tour
On March 22nd, "Breath of Life," a unique interactive exhibition
about asthma, opened at the National Library of Medicine. Occupying
the lobby and rotunda of Building 38, the exhibit will be open to
the public through June 30, 2000. The Library developed "Breath of
Life" in collaboration with the National Heart, Lung, and Blood
Institute, the National Institute of Allergy and Infectious
Diseases, and the National Institute of Environmental Health
Sciences.
Dr. Elizabeth Fee, Chief of the History of Medicine Division, is
also the NLM's exhibition director.
"This is the first time that we have collaborated with several
NIH Institutes in developing an exhibition," said Dr. Fee. "The
result is the largest and most complex show we have ever produced."
To take a virtual tour of the "Breath of Life" exhibition using
your web browser, go to www.nlm.nih.gov/hmd/breath/breathhome.html
From there, you can examine images from the exhibition, peruse the
accompanying text, learn of historical and contemporary asthma
sufferers in the "Faces of Asthma" section, scroll through the
latest information on asthma research and resources, educate and
entertain yourself by exploring interactives from the exhibition,
and note the names of the many people and organizations who worked
to make "Breath of Life" a success. Meanwhile, here is a brief
introduction to four main themes of the "Breath of Life" exhibition,
along with a sampling of images.
Asthma: From Symptom to Disease
"Asthma" refers to a chronic respiratory disease, often arising
from allergies and accompanied by labored breathing, chest
constriction and coughing. This serious health problem affects an
estimated 15 million people in the United States. Although people
have recorded asthma-like symptoms since ancient times, physicians
and researchers have always debated the exact causes and nature of
the disease. During the 17th century, English physicians such as
Thomas Willis and Sir John Floyer made the case that asthma was
different from other breathing disorders. They maintained that
asthma, as a specific form of disordered breathing, must be treated
differently from other forms of breathlessness. By the late 19th
century, physicians believed that asthma was a disease that had a
specific set of causes, clinical consequences, and requirements for
treatment, despite the diversity of individual experiences.
Four Perspectives on Asthma
In response to the question, "What is asthma?," four distinct but
overlapping answers have endured side by side in Western medicine
from the late nineteenth century to the present day: asthma as a
primary disorder of the lungs, as an allergic condition, as a
disease associated with environmental irritants, and as a disease
linked to emotional distress. Each perspective brings with it
different insights into the mechanisms of asthma and different
clinical approaches to managing the disease.
The Faces of Asthma
Theodore Roosevelt. Liza Minnelli. Jackie Joyner-Kersee. Che
Guevara. Bob Hope. Kenny G. The thread linking these seemingly
disparate lives is asthma. Each person has had to contend with
it.
Asthma has many different faces. Some who suffer from it achieve
great honor in their chosen profession. Others are everyday people
who have learned to manage their asthma successfully and are leading
full, productive lives as a result. The faces of asthma, and the
stories of people with asthma, are an important part of "Breath of
Life."
Asthma Research and Resources
The National Institutes of Health (NIH) provides funding to
scientists throughout the world to conduct research on asthma. The
goals of this work are to improve our understanding of the causes
and mechanisms of asthma and to identify better ways to treat,
manage and ultimately cure or prevent the disease. At NIH, the
entities that conduct and support most of this research are: the
National Heart, Lung, and Blood Institute, the National Institute of
Allergy and Infectious Diseases, and the National Institute of
Environmental Health Sciences.
As part of "Breath of Life," both at the exhibition itself and in
the online version, you can tap many of the foremost asthma
resources around the nation, to learn more about asthma and how to
manage it.
Visiting curators for "Breath of Life" were Robert A. Aronowitz,
MD, of the Robert Wood Johnson Medical School, and Carla C. Keirns,
MD-PhD candidate, of the University of Pennsylvania. Sheldon G.
Cohen, MD, National Institute of Allergy and Infectious Diseases,
served as a special advisor for the exhibition. Dot Sparer of
Athens, GA was an exhibition scriptwriter. Consultants were William
H. Helfand of New York, NY, and Esther Sternberg, MD, National
Institute of Mental Health. Patricia Tuohy is NLM's Exhibition
Program Manager. For a full list of credits, go to www.nlm.nih.gov/hmd/breath/credits/credit.html.
Photo: Chinese healers understood that xiao- chuan, literally
"wheezy breathing," was, like all disorders, a symptom of imbalance
in the life force they called qi (or ch'i). Physicians restored qi
by means of acupuncture, diet and exercise, among other methods.
Chinese acupuncture mannequin, 18th century. Courtesy Mütter
Museum, College of Physicians of Philadelphia.
Photo: Careful work by anatomists since the 1500s, and the
spread of anatomical knowledge by improved printing technologies,
gave 19thcentury physicians unprecedented information about the
internal structure of the lungs. This work is the Atlas of Human
Anatomy and Physiology, prepared by Sir William Turner (1832-1916)
and John Goodsir (1814-1867), Edinburgh. Collection of the
National Library of Medicine.
In the 19th century, many a questionable cure for asthma was
sold, often accompanied by stirring testimonials. Here, Himalya the
Wonderful Kola Plant Compound, comes with a "sworn affidavit" by its
satisfied customers. One thousand dollars was promised "if a Single
Testimonial Letter in the following pages is not found in Every
Respect Reliable and Truthful just as stated." (1893)
Courtesy William H. Helfand Collection, New York.
This early nebulizer is a forerunner of today's asthma
inhalers. Courtesy Mütter Museum, College of Physicians of
Philadelphia.
The Interactive Side of "Breath of Life"
Combining Asthma Education with Technology
"Breath of Life" is NLM's most ambitious exhibit yet, in terms of
high-tech wizardry. The first thing one sees of the exhibit, after
entering NLM's front door, is a large "plasma screen" -- a thin
projection device with a unique, three-dimensional feel. On this
screen is an animated illustration based on data from NLM's Visible
Human Project, depicting a pair of breathing human lungs. As the
lungs contract and expand, quotes from doctors, authors and famous
patients, describing what an asthma attack is like, fill the screen.
The combined effect is mesmerizing.
Elsewhere in "Breath of Life," there are listening devices that
let you hear what a healthy person's breathing sounds like through a
stethoscope, and compare that to an asthma sufferer's breathing.
There are videos about Olympic gold medal winner Jackie Joyner-
Kersee and how she manages her asthma, how the lungs function and
what happens to them during an asthma attack, how to use a metered
dose inhaler and a peak flow meter, how different asthma medicines
work in the lungs, and several featuring Dani, the "Sesame Street"
muppet with asthma.
Also, "Breath of Life" features two multimedia educational
experiences for visitors. "Winning with Asthma" is an interactive
game that integrates concepts and facts about Exercise-Induced
Asthma (EIA) into a commercial video game. Children, and the
minority of adults who are video game-savvy, have the opportunity to
play the popular FIFA99 Soccer game from Electronic Arts, but only
after they answer several questions about their own health status.
The arcade-styled kiosk is appealing to kids of all ages and
particularly to young soccer players with asthma. The Lister Hill
Center, the Library's research and development arm, developed and
adapted the program and obtained permission from Electronic Arts in
Canada to modify the game.
The "Faces of Asthma" kiosk, adjacent to the soccer game,
introduces exhibit guests to people from the Washington, DC area who
have asthma. Nine individuals with asthma (including a family of
five) discuss how the disease has affected their daily lives, how
they cope, and how asthma impacts others in their lives. A teenage
Olympic hopeful talks about how he controls his asthma before taking
part in martial arts matches. A young mother recounts her concerns
about taking powerful asthma medicines during her pregnancies. A
senior citizen discusses how she has been able to live a fulfilling
life, traveling and reaching out to others through various social
work activities. Asthma has not slowed her down in the least.
Using a special touch-sensitive monitor interfaced to a digital
video disk (DVD) player (donated by Phillips Electronics), exhibit
guests can select the life stories of any of the nine persons
pictured on the screen. The program is also close-captioned for the
hearing impaired. "Breath of Life" is the first application of this
new DVD touch screen technology in any public environment.
These unique features of the "Breath of Life" were the result of
the happy collaboration between NLM's History of Medicine Division
and Lister Hill's Audiovisual Program Development Branch.
Thanks to Thomas Held, Germantown, MD, for invaluable help
with this story. Held was a consultant to the Library on the
"Winning with Asthma" game and the "Faces of Asthma"
kiosk.
Photo: A young visitor to "Breath of Life" sits down at the
attraction that most people his age are drawn to first - the
"Winning with Asthma" video game.
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