National Institutes of Health (NIH)

• NIH Common Data Element Repository
• NIH Directory of Data Sharing Repositories
• NIH Data Management and Sharing Policy Overview
• NNLM Toolkit for the NIH Data Management and Sharing Policy
• NLM Data Discovery
• NIH Toolbox
• Standardize Your Research Data with the NIH Common Data Element Repository
  • On-Demand
  • Live Session
  • Recording

Other Resources

• Assistant Secretary for Technology Policy / Office of the National Coordinator for Health Information Technology (ASTP)
• W3C Data Activity
• GO FAIR Initiative
• United States Core Data for Interoperability (USCDI)
• NHLBI Cure Sickle Cell Initiative
• PhenX Toolkit