Data Science Research: Personal Health Libraries for Consumers and Patients (R01) (PAR-17-159)
The National Library of Medicine seeks applications for novel informatics and data science approaches that can help individuals gather, manage and use data and information about their personal health. A goal of this program is to advance research and application by patients and the research community through broadly sharing the results via publication, and through open source mechanisms for data or resource sharing. To bring the benefits of big data research to consumers and patients, new biomedical informatics and data science approaches are needed, shaped to meet the needs of consumers and patients, whose health literacy, language skills, technical sophistication, education and cultural traditions affect how they find, understand and use personal health information. Novel data science approaches are needed to help individuals at every step, from harvesting to storing to using data and information in a personal health library.
Applicants must base their proposed work on an informed profile of the intended users, and, the work should be developed through interaction with the user. The strongest projects will provide approaches that incorporate health data and information from more than one source, such as diagnostic images and links to full-text articles or genome sequence data linked to a family health history. An application should be centered on the problem area being addressed and the intended audience, propose a possible solution that employs novel data science or informatics, and undertake a pilot that will result in evidence of the degree of success and/or needed next steps. Applicants should expect to involve the intended users in their work.
Please carefully read and follow the instructions of the current version of PAR-17-159 ( https://grants.nih.gov/grants/guide/pa-files/PAR-17-159.html ). Note that PAR-17-159 has changed since 2016 and now it is currently listed as Clinical Trials Not Allowed for due dates on or after January 25, 2018: Only accepting applications that do not propose clinical trials. This change may affect either your resubmission or new submission. NIH is launching a series of initiatives that are rolling out in 2017-2018 to enhance the accountability and transparency of clinical research. These initiatives target key points along the whole clinical trial lifecycle from concept to results reporting. Learn more about these changes and how they will affect your research (https://grants.nih.gov/policy/clinical-trials.htm). When preparing an application for PAR 17-159 do not include an experiment (pilot study) that could be classified as a clinical trial based on the new NIH definition (https://grants.nih.gov/policy/clinical-trials/definition.htm). However, the proposed pilot study could focus on a number of factors that could be considered as a usability-type evaluation, or similar study. For help in determining whether your project is a clinical trial see https://grants.nih.gov/ct-decision/index.htm.
This program expires March 20, 2018 unless reissued. Only electronic applications are accepted.
Dr. Alan VanBiervliet firstname.lastname@example.org
Deadlines for New Applications: May 1, 2017 and March 19, 2018