Grants and Funding: Extramural Programs (EP)
Awards for NLM Administrative Supplements for Informationist Services in NIH-funded Research Projects (Admin Supp)
Informationists are information specialists, usually health sciences librarians, who have graduate training and practical experience that provides them with disciplinary background in biomedical, behavioral or biological sciences and in library and information sciences/informatics. Their cross training provides informationists with a unique perspective on the acquisition, synthesis, management and use of information in research. Informationists work as team members with research scientists and health professionals, and are sometimes called in-context information specialists for that reason. The awards bring informationists into research settings and measure the value of their contributions to the research. The Supplement provides funding for up to 2 years to an active NIH-funded researcher, in order to bring needed information expertise into the research team.
Boulware, Leigh E
Duke CTSA (Composite)
3 UL1 TR001117-05S1
Informationists: Emily S. Mazure and Megan A. Von Isenburg, Duke Medical Center Library. This project involves needs assessments to determine the pressure points, skills and tools research teams experience when preparing manuscripts within the Duke Clinical Translational Science Awards. Training modules and library services will be developed and delivered to research groups who are at the early stages of starting a manuscript.
Haynes, Erin N.
Developmental Effects of Manganese Exposure in Rural Adolescents: The CARES Cohort Comes of Age
University of Cincinnati
Informationists: Don P. Jason III, Amy Koshoffer, and Sharon A. Purtee, Health Sciences Library, UC Libraries. A primary goal of this supplemental grant is to use informationists to help the research team effectively communicate their research findings and data to the public, research community, and news media. The research team wants to make its research data accessible in several different formats, so people can interact with (and understand) the research findings in a way that is appropriate for them. The informationist team will incorporate data visualization, data accessibility and data sharing into this strategy.
Wallerstein, Nina B.
Advancing CBPR Practice Through a Collective Reflection and Measurement Toolkit
University of New Mexico Health Sciences Center
Informationist: Jacob L. Nash, University of New Mexico Health Sciences Library and Informatics Center. The project will map the extant literature on Community-Engaged Research (CEnR) to assess variations in terminologies used by the various forms of CEnR and systematically map the literature of CEnR in order to describe, compare, and contrast distinct strengths of investigations, interventions, populations studied, study designs and outcomes, and to link the literature to a model of Community-Based Participatory Research.
Genome-wide Identification of miRNAs Associated with Alcoholism Endophenotypes
University of Colorado Denver
Informationist: C. Tobin Magle, HSL Biomedical Research Support Specialist. This project has generated 180 small-RNA Next Generation Sequencing datasets from the brains of mice as a resource to the research community. This supplement will make these data accessible and reusable by submitting data and relevant workflows to public repositories, creating tutorials to facilitate reuse.
Khosla, Siddarth M
The Relationships Between Vortices, Acoustics, and Vibration in Vocal Fold Asymmetries
University of Cincinnati
Informationist: Tiffany Grant, Research Informationist; Kristen Burgess Asst Dir for Research & Informatics. They wiill increase organization and management and sharing of acoustic and airflow data; develop web-based method for data sharing and display of data; literature search on biomechanics of the voice.
Lumeng, Julie C
The Development of Eating Behaviors in Infancy
University of Michigan
Informationist: Marisa Conte, Research and Data Informationist, Senior Assoc librarian. The informationist primary goal is to embed the informationist to improve lab processes; distribute clean data to the teamas rapidly as possible; transmit research findings to the public through publications and curated/documented data sets.
In Silico Indentification of Phyto-therapies
Informationist: Erika Sevetson, Health Sciences Librarian and Andrew Creamer, Sci Data Management Specialist, Brown University Library. They will establish a metadata crosswalk between federal data sources (NIH, USDA) and digital biodiversity artifacts associated with phyto-therapeutic knowledge; develop digital library to facilitate dissemination of project findings, with web-based consumer interface.
Zimmerman, Marc A
Intergenerational Transmission of Drug Use in an Urban Sample
University of Michigan
Informationist: Alison Grodzinski, Communications Specialist, School of Public Health (has MLIS). She will improve accessibility, discoverability and use of a 12-year longitudinal data set; disseminate findings for a variety of audience; prepare datasets and documentation for deposit in a public archive; create a web portal to facilitate access.
Farrell, Brenda F
Curation and Management of Electrophysiological Data obtained from Outer Hair Cells Isolated from Cavia Porcellus
Baylor College of Medicine
Informationist: Jason Bengtson, Innovation Architect TMC Library. He will collaborate with research team to develop a data management plan to curate electrophysiological data, covering metadata, documentation for future users; placement in public repositories.
Determining the Dynamic Influence of Social Networks on Development and Health Trajectories
University of California at Davis
Informationist: Beth Callahan Head of Research Services; Xiaoli Li, Director of Content Support Services; Carl G. Stahmer, Director of Digital Scholarship, Peter Brantley, Director of Online Strategy, UC Davis Library. They will provide an interdisciplinary research team collecting different types of data need a collaborative workflow, standardized data processing schemes, and an improved database for data storage. Informationist team will also provide training in data management areas.
1/2 Howard/Hopkins Intercenter Collaboration in HPV-Associated Cancer Studies
Informationist: Young-Joo Lee, Senior Clinical Librarian. Informationist will build a system to improve quality and transfer of data in three pilot projects between Howard and JHU; develop data dictionary find HIPAA compliant digital storage infrastructure; find data repository for deidentified data; develop metadata for data citation; identify visualization tools.
Physiologically-Based Pharmacokinetic Models for Optimal Drug Dosing in Children
Informationist: Sheri Tibbs, Informaticist, Rebecca Wilgus, Project Leader, Duke CTSA. Parent grant evaluates novel platform for pediatric drug development. Informationist will enhance the resource sharing plan by sharing dosing algorithms and resulting data sets, making access to them easier, particularly for translation into clinical practice.
CTSC Informationist Services in NIH Funded Research Projects
Weill Medical College, Cornell University
Informationist: Michael Bales, Library Fellow and Informationist; Terrie Wheeler, Director, WCMC Library. Informationist will build a data literacy/use component to serve all partner instiutions; improve translational scientists' data literacy and practices; establish a governance board of library leaders from key partners.
Washington University Institute for Clinical and Translational Sciences
Informationist: Aaron Addison, Director of Scholarly Services, at Wash U libraries; Cynthia Hudson Vitale, Data Librarian at Wash U libraries. Informationist will help them improve reproducibility by interviewing researchers, studying the workflows for writing methods and data reporting, and develop a way to score reproducibility of research.
Allen, Matthew R
Enhancing Bone Strength using Combination Drug Therapy
3 R01 AR-062002-03S1
Indiana University-Purdue University at Indianapolis
Informationist: Elizabeth Whipple, Ruth Lily Medical Library. She will implement a workflow tracking system and specimen inventory database; design and implement a data management plan; build a data sharing platform to enhance collaboration; and increase dissemination of research results.
A Knowledge Environment for Neuroimaging in Child Psychiatry
3 R01 MH-083320-06S1
University of Massachusetts Medical School Worcester
Informationist: Sally Gore, Lamar Soutter Library. She will provide support for data sharing of neuroimaging information; and create a dataset level identifier for the CANDISHARE project in order to support documentation for their use and reuse in publications.
Synaptic Basis of Perceptual Learning in Primary Auditory Cortex
3 R01 DC-012557-02S1
New York University School of Medicine
Informationists: Theodora Bakker and Catherine Larson, NYU Health Sciences Library. They will create a process to add new data to supplement figures in new and existing publications; develop online interface for researcher communication and access to data; develop an online system to link and download data from published figures; and foster a consortium of researchers.
Galvin, James E
Multicultural Community Dementia Screening
3 R01 AG-040211-04S1
New York University
Informationists: Alice Graff and Joseph Nicolson, NYU Health Sciences Libraries. They will build a web-based input tool for data capture at point of collection; establish a generalizable data model and data dictionary to facilitate searching, sharing and expansion over time; and develop a web-based approach for sharing anonymized datasets to foster further research.
Hall, Steven C
Mass Spectrometry Tools in Pursuit of Salivary Biomarkers of Sjogren’s Syndrome.
3 R01 DE-022031-03S1
University of California, San Francisco
Informationist: Megan Laurance, UCSF Library and Center for Knowledge Management. Her work will target increasing the efficiency, organization, curation and analysis of proteomic data generated by the researchers; recommend bioinformatics resources to help optimize team’s prioritization of pss biomarker candidates; and facilitate dissemination of project data.
Temporal Coding and Palatability in Gustatory Cortex
3 R01 DC-007703-09S1
Informationist: Melanie Radik, Brandeis University Library. She will help the research team improve efficiency of data preprocessing; expand information sharing within and outside the team; and create a tool to enhance comparative analysis.
Liebold, Lori J
Susceptibility to and Release from Masking in Infancy and Childhood
3 R01 DC-011038-04S1
University of North Carolina-Chapel Hill
Informationists: Barbara Renner, Barrie Hayes and Kathleen McGraw, UNC Health Sciences Library. They will conduct systematic reviews on auditory and visual development to find research gaps; assess current data management processes; introduce new tools & best practices; and facilitate improved study recruitment through the use of communication technologies.
Meeker, John D
Environmental Exposures, Early Iron Deficiency and Child Neurological Development
3 R01 ES-0214645-03S1
University of Michigan
Informationists: Dr. Kai Zheng, School of Public Health and Information, and Marisa Conte, Taubman Health Sciences Library. They will study issues in collaborative data management with developing countries such as China; develop and deploy a shared data warehouse for project researchers; and disseminate new knowledge generated by their work.
Cell Adhesion Molecules in Autism: A Whole-brain Study of Genetic Mouse Models
3 R01 MH-096946-03S1
Cold Spring Harbor Laboratory
Informationist: Matthew Covey, CSHL Library. He will implement a solution to automated organization/management retrieval and archiving of serial two-photon (STP) data; assist with the management and integration of previously collected STP data; assist with identifying relevant resources; and develop a comprehensive reference management protocol for the team.
Reynolds, Angela Marie
Age Dependent Mechanical Ventilator-Induced Inflammation: Modeling and Experiments
3 R01 AG-041823-03S1
Virginia Commonwealth University
Informationists: Julie Arendt, John Cyrus, Margaret Henderson, and Martha Roseberry, VCU Libraries. They will evaluate and recommend project management tools; conduct literature searches and bibliographic management services; and assist in developing and implementing a dissemination plan.
Enterotoxigenic Bacteroides Fragilis: A Bacterial Promoter of Colon Oncogenesis
5 R01 CA-151393-04
Johns Hopkins University
Informationists: Jaime Blanck , JHU Sch of Medicine and Jennifer Darragh, Sheridan Libraries. They will be creating a comprehensive data coordination plan including file naming conventions, neutral coordination of data between 3 research groups, and a master identifier to tie all samples to the patient; and build a central depository.
Grundfest, Warren H
Non-contact, THz Sensing of Corneal Hydration
3 R01 EY-21590-02S1
University of California Los Angeles
Informationists: Vessela Ensberg and Tony Aponte, Louise Darling Library. The grant involves generation of unique data from a new technology used in diagnosis of an eye condition. The informationist will study and improve workflows for organizing, managing research data, identify metadata standards and ontologies that are appropriate, and propose a strategy for preserving the data.
Liu, Gilbert C
Delivering Geospatial Intelligence to Health Care Professionals
3 R01 LM-10923-02S1
Informationists: Jere Odell, Rick Ralston and Elizabeth Whipple, Lilly Medical Library. The grant involves enhancing the Child Health Improvement through Computer Automation system (CHICA) with GIS information, to assist primary care providers in making referrals to nearby dental, exercise or tutoring services. The informationists will provide assistance in monitoring the accuracy of referral data and literacy level of documents generated; develop a knowledge management approach to bridge GIS and CHICA implementation; and participate in community consumer health information outreach services such as identifying social and technical barriers to uptake of the enhanced data by care givers.
Luckmann, Roger S
Promoting Breast Cancer Screening in Non-Adherent Women
3 R01 CA-132935-05S1
U Mass Worcester
Informationist: Sally Gore, Lamar Soutter library. The grant involves a 3-arm randomized trial comparing 2 forms of outreach to women who are due for a screening mammogram. The interventions will run for 4 years and already involves a multidisciplinary research team including primary care, informatics, counseling and behavioral sciences. The informationist will provide metadata, database design and retrieval advice to the technical team; assist investigators in identifying key information technology issues in the existing tracking system; and work with them on a systematic review, provide customized instruction to the team, and support public access submission.
Web-assisted Tobacco Intervention with Community College Students
3 R01 CA-152093-02S1
University of Rochester
Informationists: Donna Berryman and Linda Hasman, EG Miner Library. The grant involves testing a web-based intervention for smoking cessation to be used with community college students. There is an information gathering phase involving focus groups and interviews, and also a clinical trial to test an intervention. The informationists will design a data management approach for the randomized trials and for data from the interviews and focus groups. They will help design a system for collecting, storing and accessing both audio and textual data, for tracking data versions, and also a metadata approach for the project. They will serve on the DSMC for the project.
Role of proteases and peptides in cancer pain
3 R01 DE-019796-03S1
New York University
Informationists: Aileen McCrillis, Rich McGowan and Alisa Surkis, New York University Health Sciences Library. The grant involves collecting, identifying and characterizing pain-producing mediators secreted by cancers, developing a list of molecules. The work takes place in New York and Boston, involving about 10 investigators. The informationists will assist with improving their search queries for NCBI data sources; identifying a reference management approach for use by the multiple participants; and develop a web-based data management system for each molecule identified, to enhance workflow between the 2 sites.
Dose-Response in Radionuclide Therapy
3 R01 CA-116477-07S1
Johns Hopkins University
Informationist: Victoria Goode, Welch Medical Library. The grant involves creating an online radiobiology reference resource. The resource supports a new approach to patient-specific dosimetry, enabling micro-scale dosimetry from macro-scale imaging data. The informationist will identify relevant literature; support a panel of experts that curates the resource; establish a protocol for review/update of the resource; and make recommendations for sharing data with broader audience.
Svirsky, Mario A
Clinical Management of Cochlear Implant Patients with Contralateral Hearing Aids
3 R01 DC011329-02S1
New York University
Informationists: Theodora Bakker and Karen Hanson, New York University Health Sciences Library. The grant involves development of evidence-based guidelines for post-implant management of bi-modal cochlear implants. The PI has acquired a unique data set to merge with grant-generated data. The informationists will leverage the existing data set into a tool that includes the new, unanticipated data. They will evaluate and restructure the data model and data entry tool; refine reporting queries; and provide a user friendly query tool for users unfamiliar with query languages.
Reducing disability via a Bundled Bio-Behavioral-Environmental Approach
3 R01 AG-040100-01A1S1
Johns Hopkins University
Informationists: Claire Twose and Jennifer Darragh, Welch Medical Library. The grant involves helping the disabled elderly age in place, and is testing an intervention among elderly low-income African Americans in Baltimore. The informationists will assist with capture of medical billing information from the participants; assist with use of GIS neighborhood data; identify approaches for capturing digital recordings of interviews; and assist with deposit of manuscripts in compliance with NIH Public Access.