National Information Center on Health Services Research and Health Care Technology (NICHSR)
Serving the Information Needs of the Health Services Research Community
HSR General Resources
- Data, Tools and Statistics
- HSR Social Media Resources
- Grants, Funding and Fellowships
- Education and Training
- Guidelines, Journals Other Publications
- Key Organizations
- Meetings, Conferences and Webinars
- State and State/Local Resources
- Aging Population Issues
- Child Health Services Research
- Community Benefit / Community Health Needs Assessment
- Comparative Effectiveness Research (CER)
- Dissemination and Implementation Science
- Domestic Violence -- New
- Evaluation Resources for Assessing HIT Systems and HIT Implementation, Adoption and Use
- Evidence-Based Practice and Health Technology Assessment
- Health Care Reform, Health Economics, and Health Policy
- Health Disparities
- Health Informatics
- Health Literacy and Cultural Competence
- Privacy/Security and Research with Electronic Health Records
- Public Health Services and Systems Research
- Rural Health
Child Health Services Research
Resources on Child Health Services Research.
- HSRProj (Health Services Research Projects in Progress): Projects on Child HSR - (National Library of Medicine (NLM) U.S.)
- HSRR (Health Services and Sciences Research Resources): Datasets, instruments and software related to Child HSR - (National Library of Medicine (NLM) U.S.)
- PubMed : Search for Child HSR - Ages 0-12 - (National Library of Medicine (NLM) U.S.)
- PubMed : Search for Child HSR - Ages 13-18 - (National Library of Medicine (NLM) U.S.)
- The Raising of America: Early Childhood and the Future of Our Nation--10-FEB-2016 - (Centers for Disease Control and Prevention (CDC)) - This documentary series is available for viewing at no cost through February 15, 2016.
- Key Facts: Determining Household Size for Medicaid and the Children's Health Insurance Program--04-FEB-2016 - (Center on Budget and Policy Priorities USA) - A new report looks at the Modified Adjusted Gross Income (MAGI) used to determine eligibility for Medicaid and the Children's Health Insurance Program.
- Medicaid and CHIP Eligibility, Enrollment, Renewal, and Cost-Sharing Policies as of January 2016: Findings from a 50-State Survey--21-JAN-2016 - (Kaiser Family Foundation (KFF) US) - The results of the 14th annual survey of U.S. states, this report looks at of Medicaid and CHIP eligibility, enrollment, renewal, and cost-sharing policies in the context of policies initiated in 2015.
- New Rules Proposed to Improve Child Care Quality, Health, and Safety--29-DEC-2015 - New proposed rules to improve child care have been announced by HHS's Administration for Children and Families.
- Notice of Intent to Publish a Funding Opportunity Announcement (FOA) for Child Health Quality Measurement Implementation and Development--18-DEC-2015 - (Agency for Healthcare Research and Quality (AHRQ)) - The planned FOA is expected to be published in spring, 2016 with an expected application due date in the summer, 2016
Child Health Services Research Data, Tools, and Statistics.
- AHRQ Kids' Inpatient Database - (Agency for Healthcare Research and Quality (AHRQ)) - The Kid's Inpatient Database (KID)is produced every 3 years and is a unique and powerful nationwide database of hospital stays for children. It is a sample of pediatric discharges (age 20 or younger at admission) from community, non-rehabilitation hospitals from States participating in HCUP. The KID is the only dataset on hospital use, outcomes, and charges designed to study children's use of hospital services in the United States.
- Adverse Childhood Experiences (ACE) Study - (Centers for Disease Control and Prevention (CDC)) - Information from the study, which assesses the associations between childhood maltreatment and later-life health and well-being. Includes data and statistics, and publications. Details about the study itself are included.
- CAHPS® Item Set for Children with Chronic Conditions - (Agency for Healthcare Research and Quality (AHRQ)) - CAHPS®, formerly known as the Consumer Assessment of Health Plans, is a research-based survey measurement tool that is widely used for assessing access, communication, and other aspects of the experience of health care. This set of items assesses the experiences of this population with health plans and health care services.
- Characteristics of Families Served by the Child Support (IV-D) Program: 2010 Census Survey Results (2013) - (Urban Institute (UI)) - This report uses 2010 Census data to determine the characteristics of custodial families participating in the Social Security IV-D program.
- Child Health Care Quality Toolbox - (Agency for Healthcare Research and Quality (AHRQ)) - This online resource is intended to help state and local policymakers and program directors and staff answer questions about measuring health care performance in child health programs.
- Child Health USA - (Health Resources and Services Administration (HRSA)) - Annual report on the health status and service needs of America's children. The report is a compilation of secondary data for many health status indicators, and provides both graphical and textual summaries of data and addresses long-term trends.
- Child Welfare Enacted Legislation - (National Conference of State Legislatures (NCSL)) - Search legislation by state from 2012 forward. Also available is a link to a separate database of legislation from 2005-2011. Categories include child abuse and neglect, child fatality, and education.
- ChildStats.gov - (Federal Interagency Forum on Child and Family Statistics) - This Website offers easy access to statistics and reports on children and families, including: family and social environment, economic circumstances, health care, physical environment and safety, behavior, education and health. The Forum fosters coordination, collaboration, and integration of Federal efforts to collect and report data on conditions and trends for children and families.
- Children of Immigrants Data Tool - (Urban Institute (UI)) - Interactive tool designed to generate charts and tables with indicators on children, age 0 to 17, for the United States and for the 50 states and the District of Columbia using data from the American Community Survey.
- Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) Services in Medicaid Resources for Families - (Georgetown University) - A series of resources related to the EPSDT benefit
- For Kids' Sake: State-Level Trends in Children's Health Insurance: A State-by-State Analysis (2014) - (Robert Wood Johnson Foundation (RWJF)) - This report documents health insurance coverage of children in the 50 states, using data from 2008 through 2012.
- HSRR (Health Services and Sciences Research Resources) - (National Library of Medicine, National Information Center on Health Services Research and Health Care Technology) - HSRR is a searchable database of information about research datasets, instruments/indices and software employed in Health Services Research, the Behavioral and Social Sciences and Public Health. The database includes brief descriptions of research resources and links to PubMed.
- Human Development Report (United Nations) - (United Nations) - The Human Development Report (HDR) presents a wealth of statistical information on different aspects of human development. Links to other background materials, data resources and on-going debates and discussions on human development statistics.
- Kidsdata - (Lucile Packard Foundation for Children's Health USA) - Find data about the health and well being of children in communities across California. Kidsdata.org allows users to find, customize, and use data on more than 500 measures of child health and well being. Data are available for every county, city, school district, and legislative district in California.
- Measuring America: A Child's Day: At a Glance - (U.S. Census Bureau) - This infographic outlines the amount of time each day children spend at education and reading, the availability of meals, exercising or participating in a sports activity, or in child care.
- National Center for Health Statistics (NCHS) - (Centers for Disease Control and Prevention (CDC)) - The Nation's principal health statistics agency. Looks at outcomes, access, literature synthesis, public reporting, underserved, quality, data collection methods, etc. Access data, reports, surveys, and tools.
- National Center for Health Statistics Health E Stats - (National Center for Health Statistics, CDC (NCHS)) - Health statistics, links to publications, working papers, and electronic medical record use.
- National Survey of Children with Special Health Care Needs - (Centers for Disease Control and Prevention (CDC)) - From 2009-2010, this survey analyzes the prevalence and impact of special health care needs among children in the US
- PeriStats - (March of Dimes) - Provides access to to maternal and infant health-related data at the U.S., state, county, and city level.
- Preterm Birth Report Card - (March of Dimes) - Statistical data on the levels of prematurity in the United States are presented on an interactive map.
- Securing a Healthy Future: The Commonwealth Fund State Scorecard on Child Health System Performance, 2011 - (Commonwealth Fund) - A report, chartpack and data tables which examine states' performance on 20 indicators, including children's health care access, affordability of care, prevention and treatment, the potential to lead healthy lives, and health system equity.
- The CCDF Policies Database Book of Tables: Key Cross-State Variations in CCDF Policies as of October 1, 2013 - (Urban Institute (UI)) - Child Care and Development Fund provides federal money to States, Territories, and Tribes to subsidize the cost of child care for lower-income families. This Book of Tables presents key aspects of the differences in CCDF-funded programs across United States, as of October 1, 2013.
- The Health and Well-Being of Children in Rural Areas: A Portrait of States and the Nation 2011-2012 - (Health Resources and Services Administration (HRSA)) - This chartbook provides indicators of the health and well-being of children, the supportive and risk factors in the family environment, and aspects of the neighborhood that may support or threaten families and children in rural settings.
- Youth Risk Behavior Surveillance System (YRBSS) - (Centers for Disease Control and Prevention (CDC)) - The Youth Risk Behavior Surveillance System (YRBSS) monitors health-risk behaviors that contribute to the leading causes of death and disability among youth and adults, including behaviors that contribute to unintentional injuries and violence, tobacco use, alcohol and other drug use, unhealthy dietary behaviors, and physical activity.
Child Health Services Research grants, funding, and fellowships.
- Biomedical and Behavioral Research Innovations to Ensure Equity (BRITE) in Maternal and Child Health (R15) - (Eunice Kennedy Shriver National Institute of Child Health and Human Development, NIH (NICHD)) - Funding is available for health equity research related to NICHD mission areas including: preterm birth; infant mortality; sudden infant death syndrome (SIDS); maternal mortality; reproductive health; uterine fibroid tumors; childhood, adolescent, and/or adult obesity; violence prevention; perinatal HBV and HIV/AIDS prevention; HIV/AIDS prevention; asthma; intellectual and developmental disabilities; pediatric injury prevention; and medical rehabilitation.
- Charles H. Hood Foundation Child Health Research Awards Program - Two-year grants of $150,000 are awarded to researchers who have completed their fellowship training at the time of application and are within five years of their first faculty appointment.
- Children's Health Services Research Fellowship - (Indiana University School of Medicine US) - A 2 year program committed to training high-quality clinical investigators dedicated to improving child health.
- Children's Justice Act Partnerships for Indian Communities CTAS - (Department of Justice (DoJ) USA) - The Children's Justice Act Partnerships for Indian Communities initiative offers funding for programs that provide responses to child abuse victims and their families in Native American/Alaska Native communities.
- Environmental Influences on Child Health Outcomes (ECHO) Coordinating Center (U2C) - (National Institutes of Health (NIH)) - This grant would support a Coordinating Center for the Environmental Influences on Child Health Outcomes (ECHO) program.
- Health Resources Services Administration (HRSA) - (Health Resources and Services Administration (HRSA)) - Comprising six bureaus and 12 offices, HRSA provides leadership and financial support to health care providers in every state and U.S. territory. HRSA grantees provide health care to uninsured people, people living with HIV/AIDS, and pregnant women, mothers and children. They train health professionals and improve systems of care in rural communities.
- Home and Family Based Approaches for the Prevention or Management of Overweight or Obesity in Early Childhood (R01) - (National Institutes of Health (NIH)) - This FO invites applications from organizations that propose randomized clinical trials testing novel home- or family-based interventions for the prevention or management of overweight in infancy and early childhood.
- NRSA Primary Care Research Fellowship - (Cecil G. Sheps Center for Health Services Research) - Trains primary care physicians for academic careers with an emphasis on research.
- Pediatric Health Services Research Fellowship - (University of Michigan (U-M)) - This three year program is open to physicians in family medicine, pediatrics, or medicine-pediatrics. Upon completion of the program, fellows are awarded a Master's of Science degree in Health and Health Care Research.
- Pediatric Health Services Research Fellowship Program - (Boston Children’s Hospital) - A two-year program designed to help participants develop competency in core areas of health services research.
- Reducing Health Disparities Among Minority and Underserved Children (R01) - (National Institutes of Health (NIH)) - This grant supports investigations of biological, environmental, lifestyle, social, economic, institutional, cultural, and family factors which create health disparities among children.
- Reducing Health Disparities Among Minority and Underserved Children (R21) - (National Institutes of Health (NIH)) - This grant supports investigations of biological, environmental, lifestyle, social, economic, institutional, cultural, and family factors which create health disparities among children.
- Core Functionality in Pediatric Electronic Health Records - (Agency for Healthcare Research and Quality (AHRQ)) - This technical report examines the need to add pediatric functionality to the electronic health record.
- Engaging Stakeholders to Improve the Quality of Children's Health Care - (Agency for Healthcare Research and Quality (AHRQ)) - This Implementation Guide includes suggested steps and tips for implementing initiatives for improving child health care quality from the CMS-funded national evaluation of the Children's Health Insurance Program Reauthorization Act of 2009 (CHIPRA) Quality Demonstration Grant Program.
- The Merit-Based Incentive Payment System (MIPS) & Alternative Payment Models (APMs): Delivery System Reform, Medicare Payment Reform, & the MACRA - (Centers for Medicare & Medicaid Services (CMS)) - This document outlines how the Medicare Access & CHIP Reauthorization Act of 2015 (MACRA) will reform Medicare payment, through the use of the Merit-Based Incentive Payment System (MIPS) and Alternative Payment Models (APMs).
- Time to Act: Investing in the Health of Our Children and Communities - (Robert Wood Johnson Foundation (RWJF)) - The executive summary and complete report from 2014, of the RWJF's Commission to Build a Healthier America is available. A separate section on tools and graphics from he is also provided.
- Transforming the Workforce for Children Birth Through Age 8: A Unifying Foundation (2015) - (National Academy of Medicine (NAM)) - This report examines the current capacities and practices of the workforce which works with children, their work settings, and the policies that set qualifications and continuing education requirements.
Key Child Health Services Research Organizations.
- AAP Division of Health Services Research - (American Academy of Pediatrics (AAP))
- AcademyHealth - (AcademyHealth) - AcademyHealth is the professional home for health services researchers, policy analysts, and practitioners and a non-partisan resource for health research and policy. This site provides access to child health services research information, for example, the child health services research interest group.
- Child Health Evaluation and Research Unit (CHEAR) - (University of Michigan (U-M)) - Research conducted by the CHEAR Unit provides information to improve the delivery of child health care and enhance the effectiveness and efficiency of public and private health care programs.
- Child Health Services Research Interest Group - (AcademyHealth) - This interest group provides a forum for researchers, policymakers, practitioners, and trainees to interact on health issues related to children. Links are provided to information about upcoming and past meetings.
- Child Trends - (Child Trends) - Nonprofit, nonpartisan research center that studies children at all stages of development and provides research, data, and analysis to the people and institutions whose decisions and actions affect children, including program providers, the policy community, researchers and educators, and the media.
- Families USA: Children's Health - Information and resourches on children's health collected by Families USA.
- Maternal and Child Health - (Health Resources and Services Administration (HRSA)) - The Children's Bureau was established in 1912. In 1935, the U.S. Congress enacted Title V of the Social Security Act, which authorized the Maternal and Child Health Services programs and provided a foundation and structure for assuring the health of American mothers and children.
Child Health Services Research meetings and presentations.
- 6th Annual Conference Advancing Quality Improvement Science for Children's Healthcare - April 29, 2016. Baltimore MD. Sponsored by the Quality Improvement SIG of the Academic Pediatric Association.
- Children's Health Coverage: Medicaid, CHIP, and Next Steps: View Video from 11/13/09 Briefing - (Alliance for Health Reform US, Robert Wood Johnson Foundation (RWJF)) - The Alliance for Health Reform and the Robert Wood Johnson Foundation co-sponsored this briefing to examine the factors which influence children's coverage. Questions addressed included: What are the trends in private sector coverage? How well are the enrollment simplification and outreach tools that are included in this year's CHIP reauthorization helping to reach those children who are eligible but unenrolled? How much does a child's coverage depend on where he or she lives?
- Linking Depressed Mothers to Effective Services and Supports: A Policy and Systems Agenda to Enhance Children's Development and Prevent Child Abuse and Neglect: Summary of the May 2013 Culminating Roundtable - (Urban Institute (UI)) - The results of a meeting, held May 13 and 14, 2013, are summarized here, with emphasis placed on the effects of untreated maternal depression on children.
Child Health Services Research Programs.
- Child Health Insurance Research Initiative (CHIRI™) - (Agency for Healthcare Research and Quality (AHRQ)) - CHIRI™ studies seek to uncover which health insurance and delivery features work best for low-income children, particularly minority children and those with special health care needs. Seven of the nine projects focus exclusively on or have separate analyses of children with special health care needs, and five explore disparities between minority and non-minority children.
- Child Health Services Program at Cecil G. Sheps Center for Health Services Research - (University of North Carolina at Chapel Hill Health Science Library US) - This program sponsors research and evaluation to assure that the health services available to children and women in their childbearing years are accessible, affordable, comprehensive, coordinated, community-based, culturally competent, and family-centered.
- Child and Adolescent Health - (Agency for Healthcare Research and Quality (AHRQ)) - A topic page that provides access to resources, research findings, and news for policymakers and professionals on AHRQs initiatives in child health.
- Indiana Child Health Services Research - (Indiana University School of Medicine US) - Indiana Children's Health Services Research strives to improve the health and healthcare of children by developing and applying the best scientific evidence and methods in health services research and informatics.
- State Children's Health Insurance Program (SCHIP) - (Agency for Healthcare Research and Quality (AHRQ)) - Describes activities related to SCHIP
- Vermont Children's Health Improvement Program - University of Vermont College of Medicine's population-based maternal and child health services research and quality improvement program.
- National Institute of Child Health and Human Development Listserv - (Eunice Kennedy Shriver National Institute of Child Health and Human Development, NIH (NICHD)) - This listserv provides announcements about NICHD news releases and media events, outreach, education campaigns, and other items of interest.